Stargardt's Connected

Stargardt's Connected Community Zoom Session (May)
2025-05-31 12:00 - 13:30 (Europe/London) | Online (Zoom)
Jonathon Vine, Senior Director of Clinical Operations at SpliceBio will provide an update on their Stargardt’s clinical trials with an opportunity for questions and answers afterwards.
Register in advance for this meeting
https://us02web.zoom.us/meeting/register/N86MUBXtRtifMOTxUpucVw
After registering, you will receive a confirmation email containing information about joining the meeting.

Stargardt's Connected Community Zoom Session (April)
2025-04-12 14:00 - 15:30 (Europe/London) | Online (Zoom)
Emmy award winning actress Ellen Gould will be joining us to give an update on her upcoming film, Seeing Stars, inspired by stories of five women with Stargardt’s.
Register in advance for this meeting
https://us02web.zoom.us/meeting/register/WL0HXSPoRSqXTwxet4VOPQ
After registering, you will receive a confirmation email containing information about joining the meeting.

Stargardt's Connected Parent's Zoom Session
2025-03-31 19:00 - 20:00 (Europe/London) | Online (Zoom)
A chance for parents of children and young people with Stargardt’s to get together and share ideas and discussion with other parents in the community. This month we will have a Q&A with Sian Muggridge, QTVI (qualified teacher of young people with vision impairment) all about education.
Register in advance for this meeting
https://us02web.zoom.us/meeting/register/qYW80-rZRdCaVDmSBrTU4A
After registering, you will receive a confirmation email containing information about joining the meeting.

Stargardt's Connected Young People's Zoom Session
2025-03-31 17:30 - 18:30 (Europe/London) | Online (Zoom)
A chance for young people with Stargardt’s to get together, share ideas and have discussions with other young people in the community. This month we will be talking about how to advocate for yourself.
Register in advance for this meeting
https://us02web.zoom.us/meeting/register/X9o4obwUQDK7AVA_sgZ9KA
After registering, you will receive a confirmation email containing information about joining the meeting.

2025 Stargardt Summit
2025-02-22 10:00 - 16:00 (America/New_York) | Newton Country Day School of the Sacred Heart, 785 Centre Street, Newton, MA, MA 02458, United States
Our Time is Now—there has never been a more promising time for research for treatments for Stargardt, more breathtaking advances in assistive technology, more connection between our community and helpful resources, and more excitement about the first ever fictional film in the making about Stargardt, SEEING STARS, sure to be an awareness explosion. Join us at the second annual Stargardt Summit to celebrate these advances and experience an incredible lineup of speakers and panelists, each bringing unique personalities, valuable lived experiences, and a wealth of knowledge to share. Below, you will find detailed panel descriptions and background information on our expert speakers.
Event Details
Date: Saturday, February 22, 2025
Time: 10:00 am – 4:00 pm EST (Virtual attendance ends at 1:00 pm). View the event time in your time zone here.
Location: Virtual OR In-Person at Newton Country Day School of the Sacred Heart, 785 Centre Street, Newton, MA 02458
Cost: Free

Stargardt's Connected Conference 2024
2024-11-23 10:00 - 16:30 (Europe/London) | etc. venues, 8 Fenchurch Place, London, EC3M 4PB, United Kingdom
