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X-WR-CALNAME:Stargardt's Connected
X-ORIGINAL-URL:https://stargardtsconnected.org.uk
X-WR-CALDESC:Events for Stargardt's Connected
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260131T120000
DTEND;TZID=Europe/London:20260131T133000
DTSTAMP:20260430T183816
CREATED:20260108T190826Z
LAST-MODIFIED:20260108T191324Z
UID:10000017-1769860800-1769866200@stargardtsconnected.org.uk
SUMMARY:Stargardt's Connected Community Zoom Session (January 2026)
DESCRIPTION:A presentation from Stargardt’s Connected trustee Louise Kearney on clinical trials and jargon busting. \nRegister in advance for this meeting\nhttps://us02web.zoom.us/meeting/register/Dc_MeGk5Q_m2XlT-ghiVzg \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://stargardtsconnected.org.uk/event/stargardts-connected-community-zoom-session-january-2026/
LOCATION:Online (Zoom)
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260225T173000
DTEND;TZID=Europe/London:20260225T183000
DTSTAMP:20260430T183816
CREATED:20260218T102444Z
LAST-MODIFIED:20260218T102444Z
UID:10000021-1772040600-1772044200@stargardtsconnected.org.uk
SUMMARY:Stargardt's Connected Young People's Zoom Session (February 2026)
DESCRIPTION:Getting Active with Ellie Dowdy\nWe will be joined by Ellie Dowdy\, a fantastic young member of the Stargardt’s Community who will be talking all about getting active with Stargardt’s. From the physical and emotional benefits\, to overcoming barriers and even using tech to stay fit\, Ellie will be talking us through it all. \nRegister in advance for this meeting\nhttps://us02web.zoom.us/meeting/register/bnvFkhhASl-bimVzxXgiSg \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://stargardtsconnected.org.uk/event/stargardts-connected-young-peoples-zoom-session-february-2026/
LOCATION:Online (Zoom)
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260228T120000
DTEND;TZID=Europe/London:20260228T133000
DTSTAMP:20260430T183816
CREATED:20260218T102619Z
LAST-MODIFIED:20260218T102619Z
UID:10000020-1772280000-1772285400@stargardtsconnected.org.uk
SUMMARY:Stargardt's Connected Community Zoom Session (February 2026)
DESCRIPTION:Rare Disease Day Celebration with Dr Thales Guimaraes on latest Stargardt’s Research\nWe are delighted to have Dr Thales Guimaraes present at our Community Zoom on the latest Stargardt’s Research \nRegister in advance for this meeting\nhttps://us02web.zoom.us/meeting/register/Dc_MeGk5Q_m2XlT-ghiVzg \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://stargardtsconnected.org.uk/event/stargardts-connected-community-zoom-session-february-2026/
LOCATION:Online (Zoom)
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260411T120000
DTEND;TZID=Europe/London:20260411T133000
DTSTAMP:20260430T183816
CREATED:20260313T091834Z
LAST-MODIFIED:20260313T091834Z
UID:10000023-1775908800-1775914200@stargardtsconnected.org.uk
SUMMARY:Stargardt's Connected Community Zoom Session (April 2026)
DESCRIPTION:We will be joined by Chantelle from Blind in Business for a presentation on what the organisation offers\, followed by Chris and Jess who will be sharing their career stories. \nRegister in advance for this meeting\nhttps://us02web.zoom.us/meeting/register/5FawSpYqSDWQn6LTezY0rg \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://stargardtsconnected.org.uk/event/stargardts-connected-community-zoom-session-april-2026/
LOCATION:Online (Zoom)
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260413T173000
DTEND;TZID=Europe/London:20260413T183000
DTSTAMP:20260430T183816
CREATED:20260313T090842Z
LAST-MODIFIED:20260313T091731Z
UID:10000022-1776101400-1776105000@stargardtsconnected.org.uk
SUMMARY:Stargardt's Connected Young People's Zoom Session (April 2026)
DESCRIPTION:Come and join us for an eggciting Easter-themed Children and Young People’s Zoom session on Monday 13th April. We will be joined by Tilly\, who will be leading the session where we will be doing Easter activities such as arts and crafts and a scavenger hunt.  \nRegister in advance for this meeting\nhttps://us02web.zoom.us/meeting/register/Sg7ZAuyaTyepta7WZtOD1w \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://stargardtsconnected.org.uk/event/stargardts-connected-young-peoples-zoom-session-april-2026/
LOCATION:Online (Zoom)
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260413T190000
DTEND;TZID=Europe/London:20260413T200000
DTSTAMP:20260430T183816
CREATED:20260313T091952Z
LAST-MODIFIED:20260313T091952Z
UID:10000024-1776106800-1776110400@stargardtsconnected.org.uk
SUMMARY:Stargardt's Connected Parents and Carers Zoom Session (April 2026)
DESCRIPTION:EHCP tips with QTVI Sian Muggridge \nRegister in advance for this meeting\nhttps://us02web.zoom.us/meeting/register/AwKt1jvpQxeUzAikxEwtsg \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://stargardtsconnected.org.uk/event/stargardts-connected-parents-and-carers-zoom-session-april-2026/
LOCATION:Online (Zoom)
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