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X-WR-CALNAME:Stargardt's Connected
X-ORIGINAL-URL:https://stargardtsconnected.org.uk
X-WR-CALDESC:Events for Stargardt's Connected
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TZID:Europe/London
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260411T120000
DTEND;TZID=Europe/London:20260411T133000
DTSTAMP:20260313T091834Z
CREATED:20260313T091834Z
LAST-MODIFIED:20260313T091834Z
UID:10000023-1775908800-1775914200@stargardtsconnected.org.uk
SUMMARY:Stargardt's Connected Community Zoom Session (April 2026)
DESCRIPTION:We will be joined by Chantelle from Blind in Business for a presentation on what the organisation offers\, followed by Chris and Jess who will be sharing their career stories. \nRegister in advance for this meeting\nhttps://us02web.zoom.us/meeting/register/5FawSpYqSDWQn6LTezY0rg \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://stargardtsconnected.org.uk/event/stargardts-connected-community-zoom-session-april-2026/
LOCATION:Online (Zoom)
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260413T173000
DTEND;TZID=Europe/London:20260413T183000
DTSTAMP:20260313T091731Z
CREATED:20260313T090842Z
LAST-MODIFIED:20260313T091731Z
UID:10000022-1776101400-1776105000@stargardtsconnected.org.uk
SUMMARY:Stargardt's Connected Young People's Zoom Session (April 2026)
DESCRIPTION:Come and join us for an eggciting Easter-themed Children and Young People’s Zoom session on Monday 13th April. We will be joined by Tilly\, who will be leading the session where we will be doing Easter activities such as arts and crafts and a scavenger hunt.  \nRegister in advance for this meeting\nhttps://us02web.zoom.us/meeting/register/Sg7ZAuyaTyepta7WZtOD1w \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://stargardtsconnected.org.uk/event/stargardts-connected-young-peoples-zoom-session-april-2026/
LOCATION:Online (Zoom)
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260413T190000
DTEND;TZID=Europe/London:20260413T200000
DTSTAMP:20260313T091952Z
CREATED:20260313T091952Z
LAST-MODIFIED:20260313T091952Z
UID:10000024-1776106800-1776110400@stargardtsconnected.org.uk
SUMMARY:Stargardt's Connected Parents and Carers Zoom Session (April 2026)
DESCRIPTION:EHCP tips with QTVI Sian Muggridge \nRegister in advance for this meeting\nhttps://us02web.zoom.us/meeting/register/AwKt1jvpQxeUzAikxEwtsg \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://stargardtsconnected.org.uk/event/stargardts-connected-parents-and-carers-zoom-session-april-2026/
LOCATION:Online (Zoom)
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260516T120000
DTEND;TZID=Europe/London:20260516T133000
DTSTAMP:20260508T133852Z
CREATED:20260508T133852Z
LAST-MODIFIED:20260508T133852Z
UID:10000025-1778932800-1778938200@stargardtsconnected.org.uk
SUMMARY:Stargardt's Connected Community Zoom Session (May 2026)
DESCRIPTION:Join us on Saturday 16th May where we will be joined by our wonderful trustee Robert McCann brining us all the top tips and advice on how to use assistive tech to enhance our daily lives living with Stargardt’s. \nRegister in advance for this meeting\n https://us02web.zoom.us/meeting/register/SXWwRc5PSTClKJRNge3sYw \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://stargardtsconnected.org.uk/event/stargardts-connected-community-zoom-session-may-2026/
LOCATION:Online (Zoom)
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260601T173000
DTEND;TZID=Europe/London:20260601T183000
DTSTAMP:20260518T142345Z
CREATED:20260518T142232Z
LAST-MODIFIED:20260518T142345Z
UID:10000027-1780335000-1780338600@stargardtsconnected.org.uk
SUMMARY:Stargardt's Connected Young People's Zoom Session (June 2026)
DESCRIPTION:We will be joined by the fantastic Zakia\, a wellbeing and mindfulness practitioner\, to guide us through some mental health and wellbeing activities. \nRegister in advance for this meeting\nhttps://us02web.zoom.us/meeting/register/iLUQXbAbRz6VTpwCeXf03g \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://stargardtsconnected.org.uk/event/stargardts-connected-young-peoples-zoom-session-june-2026/
LOCATION:Online (Zoom)
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260601T190000
DTEND;TZID=Europe/London:20260601T200000
DTSTAMP:20260518T142331Z
CREATED:20260518T142140Z
LAST-MODIFIED:20260518T142331Z
UID:10000026-1780340400-1780344000@stargardtsconnected.org.uk
SUMMARY:Stargardt's Connected Parents and Carers Zoom Session (June 2026)
DESCRIPTION:Join us on Monday 1st June for our next Parent and Carer Zoom session where we will be joined by Sian Muggridge\, Qualified Teacher of Visually Impaired\, to discuss educational transitions\, from primary to secondary\, post-16 and beyond. \nRegister in advance for this meeting\nhttps://us02web.zoom.us/meeting/register/Tei8patPSF-a56ijTW9rFA \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://stargardtsconnected.org.uk/event/stargardts-connected-parents-and-carers-zoom-session-june-2026/
LOCATION:Online (Zoom)
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260706T173000
DTEND;TZID=Europe/London:20260706T183000
DTSTAMP:20260702T124029Z
CREATED:20260702T124029Z
LAST-MODIFIED:20260702T124029Z
UID:10000028-1783359000-1783362600@stargardtsconnected.org.uk
SUMMARY:Stargardt's Connected Young People's Zoom Session (July 2026)
DESCRIPTION:Top tips for travelling and sharing experiences and advice for making the best day out! \nRegister in advance for this meeting\nhttps://us02web.zoom.us/meeting/register/AddM8kHTR0GAi8uPEwg99A \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://stargardtsconnected.org.uk/event/stargardts-connected-young-peoples-zoom-session-july-2026/
LOCATION:Online (Zoom)
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260711T120000
DTEND;TZID=Europe/London:20260711T133000
DTSTAMP:20260702T123928Z
CREATED:20260702T123928Z
LAST-MODIFIED:20260702T123928Z
UID:10000029-1783771200-1783776600@stargardtsconnected.org.uk
SUMMARY:Stargardt's Connected Community Zoom Session (July 2026)
DESCRIPTION:We will be joined by Dr Louise Terry from Cardiff University to talk about an exciting research study exploring Stargardt’s disease and how it affects the retina. Dr Terry will explain the aims of the study\, what participation involves\, and why research like this is so important in improving our understanding of inherited eye diseases. There will also be an opportunity to ask questions and find out more about how you can get involved. \nRegister in advance for this meeting\nhttps://us02web.zoom.us/meeting/register/xWM94psWQJiEJJ8E3sJAMw \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://stargardtsconnected.org.uk/event/stargardts-connected-community-zoom-session-july-2026/
LOCATION:Online (Zoom)
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260801T120000
DTEND;TZID=Europe/London:20260801T160000
DTSTAMP:20260702T123558Z
CREATED:20260702T123558Z
LAST-MODIFIED:20260702T123558Z
UID:10000030-1785585600-1785600000@stargardtsconnected.org.uk
SUMMARY:Picnic in the Park (2026)
DESCRIPTION:Join us in Hyde Park London for a day of fun in the sun and sharing experiences with others in the Stargardt’s Community. \nPlease let us know you will be attending by emailing us on events@stargardtsconnected.org.uk
URL:https://stargardtsconnected.org.uk/event/picnic-in-the-park-2026/
LOCATION:Hyde Park\, Parade Ground\, London\, W2 2UH\, United Kingdom
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261010
DTEND;VALUE=DATE:20261011
DTSTAMP:20260719T150505Z
CREATED:20260719T150347Z
LAST-MODIFIED:20260719T150505Z
UID:10000031-1791590400-1791676799@stargardtsconnected.org.uk
SUMMARY:Harry Potter Studios Family Day with VICTA & Stargardt’s Connected
DESCRIPTION:Join VICTA and Stargardt’s Connected as we embark upon a magical journey through Hogwarts!\nYou’ll be able to walk in the footsteps of Harry Potter and explore the wonders of the wizarding world. This Autumn\, Dark Arts will see the Great Hall ceiling decorated with over 100 floating pumpkins as well as a Halloween feast. Follow the Dark Mark trail\, test your wand combat moves against Death Eaters\, and prepare to face Dementors. \nOn the day we are aiming to secure an Audio Descriptive tour (TBC)\, and Tactile Tours are available in selected areas of the Studio. We’ll be getting up close to the magic by touching authentic props and fabrics from the Harry Potter films! \nThe Studio also provides accessible image books to use during the tour (available in Braille or large print). These offer an accessible map of the Studio Tour as well as images and key information about the props on display. \nNote: under 5s are free. One companion ticket can be claimed per child with a visual impairment (either a Certificate of Visual Impairment or a letter from an ophthalmologist will need to be presented upon entry to the studios to claim). \n\nWho: 5 to 17 years\nLocation: Studio Tour Drive\, Leavesden\, WD25 7LR\nCost: £10 per person\, under 5s go free. 1 companion ticket available per VI child over the age of 5\nClosing date: Monday 24 August 2026\nMore information and booking application: https://www.victa.org.uk/victa-calendar/harry-potter-studios-family-day-with-victa-stargardts-connected/
URL:https://stargardtsconnected.org.uk/event/harry-potter-studios-family-day-with-victa-stargardts-connected/
LOCATION:Studio Tour Drive\, Studio Tour Drive\, Leavesden\, WD25 7LR\, United Kingdom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20261121T100000
DTEND;TZID=Europe/London:20261121T170000
DTSTAMP:20260719T165514Z
CREATED:20260719T165514Z
LAST-MODIFIED:20260719T165514Z
UID:10000032-1795255200-1795280400@stargardtsconnected.org.uk
SUMMARY:Stargardt's Connected Conference 2026
DESCRIPTION:Our 2026 Conference will take place on 21st November from 10.00am – 5.00pm. Please register now to secure your place! \n\nCost: Free\nLocation: In-Person at 1 America Square\, London EC3N 2LB (full day) OR online (afternoon only)\nLatest information can be viewed here: https://stargardtsconnected.org.uk/conference-registration/
URL:https://stargardtsconnected.org.uk/event/stargardts-connected-conference-2026/
LOCATION:1 America Square\, 1 America Square\, London\, EC3N 2LB\, United Kingdom
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