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X-WR-CALNAME:Stargardt's Connected
X-ORIGINAL-URL:https://stargardtsconnected.org.uk
X-WR-CALDESC:Events for Stargardt's Connected
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260921T173000
DTEND;TZID=Europe/London:20260921T183000
DTSTAMP:20260918T150444Z
CREATED:20260918T150444Z
LAST-MODIFIED:20260918T150444Z
UID:10000038-1790011800-1790015400@stargardtsconnected.org.uk
SUMMARY:Stargardt's Connected Young People's Zoom Session (September 2026)
DESCRIPTION:Join us on Monday 21st September from 5:30pm to 6:30pm for a session focused on helping you feel confident going back to school\, starting college or university and speaking up about what you need when living with Stargardt’s disease. We’ll explore ways to explain your needs\, ask for support\, and work with teachers to make changes that help you learn and feel included. We’ll also share ideas about classroom adaptations\, useful strategies\, and how you can feel more confident advocating for yourself at school\, college or university. There will be an opportunity to ask questions\, share experiences\, and learn from others. \nRegister in advance for this meeting\n  \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://stargardtsconnected.org.uk/event/stargardts-connected-young-peoples-zoom-session-september-2026/
LOCATION:Online (Zoom)
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260921T190000
DTEND;TZID=Europe/London:20260921T200000
DTSTAMP:20260918T150458Z
CREATED:20260918T150458Z
LAST-MODIFIED:20260918T150458Z
UID:10000039-1790017200-1790020800@stargardtsconnected.org.uk
SUMMARY:Stargardt's Connected Parents and Carers Zoom Session (September 2026)
DESCRIPTION:Join us on Monday 21st September at 7:00pm for a session focused on educational transitions for children and young people with Stargardt’s disease\, supporting parents and carers as they help their child navigate changes in their education journey. We will come together to share practical advice on preparing for transitions\, working with schools\, and ensuring the right support and adjustments are in place. \nWe’ll explore ways to advocate for your child’s needs\, build confidence\, and help create a more accessible and inclusive learning environment. \nRegister in advance for this meeting\n https://us02web.zoom.us/meeting/register/Td59RuK7RSqAEy3wWmltbQ \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://stargardtsconnected.org.uk/event/stargardts-connected-parents-and-carers-zoom-session-september-2026/
LOCATION:Online (Zoom)
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260926T120000
DTEND;TZID=Europe/London:20260926T133000
DTSTAMP:20260918T150516Z
CREATED:20260918T150516Z
LAST-MODIFIED:20260918T150516Z
UID:10000040-1790424000-1790429400@stargardtsconnected.org.uk
SUMMARY:Stargardt's Connected Community Zoom Session (September 2026)
DESCRIPTION:Join us on Saturday 26th August from 12:00pm to 1:30pm for a Zoom session exploring home technology and how you can adapt your home to better suit your needs when living with Stargardt’s disease. We will be joined by Robert McCann\, Stargardt’s Connected Trustee and Equipment Centre Coordinator at Sheffield Royal Society for the Blind\, who will share practical advice\, personal experiences\, and useful tips to help make everyday life at home easier and more accessible. There will also be lots of opportunity to share your home tech adaptations techniques and ideas with the group. In the second part\, we will have our usual breakout sessions where you’ll have the opportunity to speak to others in smaller groups\, share your experiences and connect with others in the community. \nRegister in advance for this meeting\n https://us02web.zoom.us/meeting/register/-qRXHk2QQvSodoHA5NwQJQ \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://stargardtsconnected.org.uk/event/stargardts-connected-community-zoom-session-september-2026/
LOCATION:Online (Zoom)
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20261003T100000
DTEND;TZID=Europe/London:20261003T110000
DTSTAMP:20260911T140710Z
CREATED:20260911T140710Z
LAST-MODIFIED:20260911T140710Z
UID:10000033-1791021600-1791025200@stargardtsconnected.org.uk
SUMMARY:Fitness Session with Shreya Mehta (03/10/26)
DESCRIPTION:Join us for our upcoming Zoom exercise sessions with Shreya Mehta\, a qualified personal trainer who is also living with Stargardt’s. These beginner-friendly sessions are designed to help you move\, build confidence\, and stay active in a supportive and inclusive environment. Shreya will guide you through accessible exercises\, with opportunities to progress and challenge yourself as you feel comfortable. Whether you’re new to exercise or looking to build a regular routine\, these sessions are a great way to get started. \nAnyone is welcome including children and family members so please do bring them along. Sessions will take place on Zoom giving you the flexibility to join from home and take part at a pace that works for you. \nIf you are interested in 1-1 online or in-person sessions with Shreya\, please do reach out to her at mehtafit.personaltraining@gmail.com or through her instagram page @mehtafit_pt. \nRegister here: https://us02web.zoom.us/meeting/register/H4aN6OtKRcGAhwyxrGiymw(opens in new tab)
URL:https://stargardtsconnected.org.uk/event/fitness-session-with-shreya-mehta-03-10-26/
LOCATION:Online (Zoom)
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261010
DTEND;VALUE=DATE:20261011
DTSTAMP:20260719T150505Z
CREATED:20260719T150347Z
LAST-MODIFIED:20260719T150505Z
UID:10000031-1791590400-1791676799@stargardtsconnected.org.uk
SUMMARY:Harry Potter Studios Family Day with VICTA & Stargardt’s Connected
DESCRIPTION:Join VICTA and Stargardt’s Connected as we embark upon a magical journey through Hogwarts!\nYou’ll be able to walk in the footsteps of Harry Potter and explore the wonders of the wizarding world. This Autumn\, Dark Arts will see the Great Hall ceiling decorated with over 100 floating pumpkins as well as a Halloween feast. Follow the Dark Mark trail\, test your wand combat moves against Death Eaters\, and prepare to face Dementors. \nOn the day we are aiming to secure an Audio Descriptive tour (TBC)\, and Tactile Tours are available in selected areas of the Studio. We’ll be getting up close to the magic by touching authentic props and fabrics from the Harry Potter films! \nThe Studio also provides accessible image books to use during the tour (available in Braille or large print). These offer an accessible map of the Studio Tour as well as images and key information about the props on display. \nNote: under 5s are free. One companion ticket can be claimed per child with a visual impairment (either a Certificate of Visual Impairment or a letter from an ophthalmologist will need to be presented upon entry to the studios to claim). \n\nWho: 5 to 17 years\nLocation: Studio Tour Drive\, Leavesden\, WD25 7LR\nCost: £10 per person\, under 5s go free. 1 companion ticket available per VI child over the age of 5\nClosing date: Monday 24 August 2026\nMore information and booking application: https://www.victa.org.uk/victa-calendar/harry-potter-studios-family-day-with-victa-stargardts-connected/
URL:https://stargardtsconnected.org.uk/event/harry-potter-studios-family-day-with-victa-stargardts-connected/
LOCATION:Studio Tour Drive\, Studio Tour Drive\, Leavesden\, WD25 7LR\, United Kingdom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20261017T100000
DTEND;TZID=Europe/London:20261017T110000
DTSTAMP:20260911T141050Z
CREATED:20260911T141050Z
LAST-MODIFIED:20260911T141050Z
UID:10000034-1792231200-1792234800@stargardtsconnected.org.uk
SUMMARY:Fitness Session with Shreya Mehta (17/10/26)
DESCRIPTION:Join us for our upcoming Zoom exercise sessions with Shreya Mehta\, a qualified personal trainer who is also living with Stargardt’s. These beginner-friendly sessions are designed to help you move\, build confidence\, and stay active in a supportive and inclusive environment. Shreya will guide you through accessible exercises\, with opportunities to progress and challenge yourself as you feel comfortable. Whether you’re new to exercise or looking to build a regular routine\, these sessions are a great way to get started. \nAnyone is welcome including children and family members so please do bring them along. Sessions will take place on Zoom giving you the flexibility to join from home and take part at a pace that works for you. \nIf you are interested in 1-1 online or in-person sessions with Shreya\, please do reach out to her at mehtafit.personaltraining@gmail.com or through her instagram page @mehtafit_pt. \nRegister here: https://us02web.zoom.us/meeting/register/J0dQU4R4S6SSm6WqMYiDCQ(opens in new tab)
URL:https://stargardtsconnected.org.uk/event/fitness-session-with-shreya-mehta-17-10-26/
LOCATION:Online (Zoom)
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20261031T100000
DTEND;TZID=Europe/London:20261031T110000
DTSTAMP:20260911T141149Z
CREATED:20260911T141149Z
LAST-MODIFIED:20260911T141149Z
UID:10000035-1793440800-1793444400@stargardtsconnected.org.uk
SUMMARY:Fitness Session with Shreya Mehta (31/10/26)
DESCRIPTION:Join us for our upcoming Zoom exercise sessions with Shreya Mehta\, a qualified personal trainer who is also living with Stargardt’s. These beginner-friendly sessions are designed to help you move\, build confidence\, and stay active in a supportive and inclusive environment. Shreya will guide you through accessible exercises\, with opportunities to progress and challenge yourself as you feel comfortable. Whether you’re new to exercise or looking to build a regular routine\, these sessions are a great way to get started. \nAnyone is welcome including children and family members so please do bring them along. Sessions will take place on Zoom giving you the flexibility to join from home and take part at a pace that works for you. \nIf you are interested in 1-1 online or in-person sessions with Shreya\, please do reach out to her at mehtafit.personaltraining@gmail.com or through her instagram page @mehtafit_pt. \nRegister here: https://us02web.zoom.us/meeting/register/L1S1edFHQteVy5LXavJ6pA(opens in new tab)
URL:https://stargardtsconnected.org.uk/event/fitness-session-with-shreya-mehta-31-10-26/
LOCATION:Online (Zoom)
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20261114T100000
DTEND;TZID=Europe/London:20261114T110000
DTSTAMP:20260911T141240Z
CREATED:20260911T141240Z
LAST-MODIFIED:20260911T141240Z
UID:10000036-1794650400-1794654000@stargardtsconnected.org.uk
SUMMARY:Fitness Session with Shreya Mehta (14/11/26)
DESCRIPTION:Join us for our upcoming Zoom exercise sessions with Shreya Mehta\, a qualified personal trainer who is also living with Stargardt’s. These beginner-friendly sessions are designed to help you move\, build confidence\, and stay active in a supportive and inclusive environment. Shreya will guide you through accessible exercises\, with opportunities to progress and challenge yourself as you feel comfortable. Whether you’re new to exercise or looking to build a regular routine\, these sessions are a great way to get started. \nAnyone is welcome including children and family members so please do bring them along. Sessions will take place on Zoom giving you the flexibility to join from home and take part at a pace that works for you. \nIf you are interested in 1-1 online or in-person sessions with Shreya\, please do reach out to her at mehtafit.personaltraining@gmail.com or through her instagram page @mehtafit_pt. \nRegister here: https://us02web.zoom.us/meeting/register/yCvgY1ZHRRKxjodq6Qw0rQ(opens in new tab)
URL:https://stargardtsconnected.org.uk/event/fitness-session-with-shreya-mehta-14-11-26/
LOCATION:Online (Zoom)
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20261121T100000
DTEND;TZID=Europe/London:20261121T170000
DTSTAMP:20260719T165514Z
CREATED:20260719T165514Z
LAST-MODIFIED:20260719T165514Z
UID:10000032-1795255200-1795280400@stargardtsconnected.org.uk
SUMMARY:Stargardt's Connected Conference 2026
DESCRIPTION:Our 2026 Conference will take place on 21st November from 10.00am – 5.00pm. Please register now to secure your place! \n\nCost: Free\nLocation: In-Person at 1 America Square\, London EC3N 2LB (full day) OR online (afternoon only)\nLatest information can be viewed here: https://stargardtsconnected.org.uk/conference-registration/
URL:https://stargardtsconnected.org.uk/event/stargardts-connected-conference-2026/
LOCATION:1 America Square\, 1 America Square\, London\, EC3N 2LB\, United Kingdom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20261205T100000
DTEND;TZID=Europe/London:20261205T230000
DTSTAMP:20260911T141330Z
CREATED:20260911T141330Z
LAST-MODIFIED:20260911T141330Z
UID:10000037-1796464800-1796511600@stargardtsconnected.org.uk
SUMMARY:Fitness Session with Shreya Mehta (05/12/26)
DESCRIPTION:Join us for our upcoming Zoom exercise sessions with Shreya Mehta\, a qualified personal trainer who is also living with Stargardt’s. These beginner-friendly sessions are designed to help you move\, build confidence\, and stay active in a supportive and inclusive environment. Shreya will guide you through accessible exercises\, with opportunities to progress and challenge yourself as you feel comfortable. Whether you’re new to exercise or looking to build a regular routine\, these sessions are a great way to get started. \nAnyone is welcome including children and family members so please do bring them along. Sessions will take place on Zoom giving you the flexibility to join from home and take part at a pace that works for you. \nIf you are interested in 1-1 online or in-person sessions with Shreya\, please do reach out to her at mehtafit.personaltraining@gmail.com or through her instagram page @mehtafit_pt. \nRegister here: https://us02web.zoom.us/meeting/register/1nKrxjxsQZmXpP6hIqA7EA(opens in new tab)
URL:https://stargardtsconnected.org.uk/event/fitness-session-with-shreya-mehta-05-12-26/
LOCATION:Online (Zoom)
END:VEVENT
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