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SUMMARY:Stargardt's Connected Information Day
DESCRIPTION:Register Now!\nhttps://us02web.zoom.us/meeting/register/MeABUY-aTHW90Qg8-0ydMg \nWe have an exciting programme of presentations covering a range of topics. Here is the agenda for the day: \n\n14:00-14:10: Introductions and order of the day\n14:10-14:40: AAVantgarde Bio presentation with Q and A\n14:40-15:10: Alkeus Pharmaceuticals presentation with Q and A\n15:10-15:15: Break\n15:15-15:45: Tech Session with Sam Seavey from The Blind Life with Q and A\n15:45-16:15: Living well with Stargardt’s panel session with community members speaking about their experiences including Q and A:\n– Emily – Navigating the education system\n– Alice – Bringing up a young family when you have Stargardt’s\n– Tom and Toby – Finding employment and being in the workplace\n16:15-16:20: Plenary\n16:20-16:30: Break\n16:30-17:30: Breakout Sessions – informal small group sessions to socialise and speak to other members. There will be a separate Parent / Carer breakout session for those who want to join\, with Sian QTVI (qualified teacher of visually impaired) there to answer any education-related questions.\n\nThank you to our sponsors: Alkeus Pharmaceuticals and AAVantgarde Bio
URL:https://stargardtsconnected.org.uk/event/stargardts-connected-information-day/
LOCATION:Online (Zoom)
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