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News from our Faceboook page

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Stargardt's Connected
2 hours ago

Last week Bhavna attended the United in Vision 2026 Conference in Fort Worth, Texas, which brought together two leading events, the Foundation Fighting Blindness VISIONS Conference and the Retina International World Congress, into one global gathering.

Over two inspiring and impactful days, attendees heard about the latest research advancements, emerging therapies, and the hope they bring for future treatments. The conference was also a powerful reminder of the importance of connection, collaboration, and working together to drive progress for the community.

One of the many highlights included meeting inspiring advocates Sam Seavey of The Blind Life and Brad Manning from Two Blind Brothers. Having the opportunity to speak with them personally and share how meaningful their advocacy, mission, and support are to the community was truly memorable.

A huge thank you to Foundation Fighting Blindness and Retina International for hosting such an outstanding event. We left feeling energized, inspired, and excited about what the future holds.

PD1: Bhavna standing with Sam Seavey from The Blind Life.

PD2: Bhavna standing with Brad Manning from Two Blind Brothers.

PD3: Bhavna standing with Joe Brennan (left) and Claudio Spera (right) from AAVantgarde Bio.

PD4: one of the conference talks with the audience in the front and a large screen in the back that reads ‘Innovating Access: AI that moves and grooves with you.’

@theblindlifesam @twoblindbrothers @fightblindness @retina_int

#StargardtsConnected #UnitedInVision2026 #RetinaInternational #FoundationFightingBlindness
#Research Community Advocacy
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Stargardt's Connected
24 hours ago

Rita has now successfully completed her incredible London to Paris cycling challenge in support of Stargardt’s Connected, finishing her journey between the 10th and 14th of June, and raising an incredible £1500.

What began as an ambitious fundraising ride of over 300 miles has been an inspiring achievement from start to finish. From London, through Kent, across into France, Rita crossed the finish line at the Eiffel Tower in Paris after four unforgettable days on the road.

With a deeply personal connection to Stargardt’s Connected and its mission, Rita’s dedication has helped raise vital awareness and support for families affected by Stargardt’s, while contributing directly to our ongoing work to support research and seek a cure.

We are so grateful for her determination, strength, and generosity, and to everyone who donated and supported her along the way.

If you would still like to support Rita’s fundraising, her JustGiving page remains open:
www.justgiving.com/page/rita-parekh-patel-1?utm_medium=FR&utm_source=WA

PD1: a photo of Rita celebrating her win with a fellow cyclist in front the Eiffel Tower.

PD2: a photo of Rita cycling on her journey wearing her cycling gear and white helmet.

PD3: a photo of Rita giving her legs a well deserved stretch across her bike as she makes her way to France.

#LondonToParis #CyclingChallenge #StargardtsConnected #Fundraiser #RaiseAwareness
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Stargardt's Connected
2 days ago

Come and join us on Monday 6th July for our next Children and Young People’s Zoom session.

This session will focus on sharing our favourite day trips and travel experiences. Ethan will be joining us to talk about some of his most memorable days out and offer useful tips for planning great trips. It will also be a fantastic opportunity for everyone to exchange stories, share recommendations, and learn from each other about making the most of a day out.

Here is the link to register: us02web.zoom.us/meeting/register/AddM8kHTR0GAi8uPEwg99A

PD1: a yellow poster announcing the next Children and Young People’s Zoom session on Monday 6th July at 5:30pm BST (UK time).

#StargardtsConnected #Stargardts #ChildrenAndYoungPeople #Zoom
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