Launch of Stargardt's Community Register

We’re excited to launch our Stargardt's Community Register. If you or someone in your family has Stargardt’s we’d love you to take a look. Click the button below to find out more.

Regular giving helps us do so much more

All our donations go directly towards our primary mission of raising awareness, providing support and seeking a cure.


Learn all about our fundraising and what you can do to join in and help!

Stargardt’s Connected Community

This is a community! Our community includes people affected by Stargardt’s, clinicians, researchers, opticians and pharmaceutical industries.

If you would like to contact us, contribute any ideas or suggestions to our website, please click on the button below.


We are so pleased to have resumed our face to face meet ups again and we will post any of our upcoming events on the Events section of the website.

We know the importance of connecting with others affected by Stargardt's so our virtual Zoom Sessions and face to face meet ups are an excellent way to do so.

We hold regular Adult Zoom sessions and they have proved really popular as we connect with people around the world sharing stories and tips. We also have regular speakers, either from the Medical Professional community or members of the community affected by Stargardt's. You can watch the recordings of some of these sessions on our YouTube Channel

We also hold separate fun informal Zoom sessions for children and young people with Stargardt’s. This is a fantastic way for children and young people to chat to one another, play games and have fun!

If you would like to find out more or join our sessions, then please leave a message and we will get back to you.

Forthcoming Events

Hyde Park Picnic

We are so excited to be able to hold our Stargardt’s Connected Picnic again! This year we are holding it on Sunday 24th July 1pm-4pm at Hyde Park London. This...
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Parent’s Zoom Session: Sharing experiences as a Parent with Stargardt’s

Saturday 18th June from 12pm-2pm. This is for parents / carers of children with Stargardt’s disease. In the first hour we are delighted to have the lovely Alice Cadman and...
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Children and Young People Zoom

Saturday 2nd July from 10.30am-11.30am. The children had lots of fun making pancakes at the last session, and suggested having a virtual drawing session for the next Zoom. So we...
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Event Recordings

You can view recordings of some of our recent Zoom sessions by following the links below: