Launch of Stargardt's Community Register

We’re excited to launch our Stargardt's Community Register. If you or someone in your family has Stargardt’s we’d love you to take a look. Click the button below to find out more.

Regular giving helps us do so much more

All our donations go directly towards our primary mission of raising awareness, providing support and seeking a cure.


Learn all about our fundraising and what you can do to join in and help!

Stargardt’s Connected Community

This is a community! Our community includes people affected by Stargardt’s, clinicians, researchers, opticians and pharmaceutical industries.

If you would like to contact us, contribute any ideas or suggestions to our website, please click on the button below.


We are so pleased to have resumed our face to face meet ups again and we will post any of our upcoming events on the Events section of the website.

We know the importance of connecting with others affected by Stargardt's so our virtual Zoom Sessions and face to face meet ups are an excellent way to do so.

We hold regular Adult Zoom sessions and they have proved really popular as we connect with people around the world sharing stories and tips. We also have regular speakers, either from the Medical Professional community or members of the community affected by Stargardt's. You can watch the recordings of some of these sessions on our YouTube Channel

We also hold separate fun informal Zoom sessions for children and young people with Stargardt’s. This is a fantastic way for children and young people to chat to one another, play games and have fun!

If you would like to find out more or join our sessions, then please leave a message and we will get back to you.

Forthcoming Events

Parent’s Zoom Session

Wednesday 27th April from 7.30pm-9.00pm. This is for parents / carers of children with Stargardt’s disease. We have two fantastic speakers, both Trained Qualified Teachers for Visually Impaired Children (QTVI),...
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Children and Young People Zoom Virtual Cooking Session

Saturday 14th May from 10.30am-11.30am. This session will hold a food theme as we will be holding a virtual cooking session- making pancakes! There will be a short fun food...
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Event Recordings

You can view recordings of some of our recent Zoom sessions by following the links below: