About Stargardt’s

Stargardt’s disease is an inherited progressive disease that affects the retina.

The disease causes a blurring of vision, especially the ability to see fine details, for example difficulty reading a book and recognising faces.

It is most commonly diagnosed in children and young adults, but can also be diagnosed in middle age and less often in older people. It affects approximately one in 10,000 people and therefore is classed as a rare condition.

There is currently no treatment or cure for Stargardt’s disease.

Rare Disease Day

28th February 2021
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Stargardt’s Connected Community

This is a community! Our community includes people affected by Stargardt’s, clinicians, researchers, opticians and pharmaceutical industries.

If you would like to contact us, contribute any ideas or suggestions to our website, please click on the button below.

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Fundraising

Learn all about our fundraising and what you can do to join in and help!

FUNDRAISING INFORMATION

EVENTS

Unfortunately, due to the current pandemic, we are unable to hold any face to face meet ups at the moment. However, we understand the importance of connecting with our community and so hold regular Zoom sessions for those affected by the condition. These are informal sessions and have proved really popular as we connect with people around the world sharing stories and tips.

We also hold separate fun informal Zoom sessions for children and young people with Stargardt’s.

If you would like to find out more or join our sessions, then please leave a message and we will get back to you.

We use events to raise awareness, provide support, build our community and raise funds. Pictures from previous events can be seen below. As and when we are able to have events again we will list them here on the website.

Forthcoming Events

Rare Disease Day Zoom meeting

Sunday 28th February
12pm - 2pm GMT

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