About Stargardt’s

Stargardt’s disease is an inherited progressive disease that affects the retina.

The disease causes a blurring of vision, especially the ability to see fine details, for example difficulty reading a book and recognising faces.

It is most commonly diagnosed in children and young adults, but can also be diagnosed in middle age and less often in older people. It affects approximately one in 10,000 people and therefore is classed as a rare condition.

There is currently no treatment or cure for Stargardt’s disease.

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Stargardt’s Connected Community

This is a community! Our community includes people affected by Stargardt’s, clinicians, researchers, opticians and pharmaceutical industries.

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Sarah Stiffin and the London Marathon

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Professor Michel Michaelides consultant ophthalmologist at Moorfields Eye Hospital

Professor Michel Michaelides

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Odette Battarel

Odette’s story

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Fundraising

Learn all about our fundraising and what you can do to join in and help!

FUNDRAISING INFORMATION

EVENTS

We have lots of events! We use these to raise awareness, provide support, build our community and raise funds. Pictures from recent events can be seen below. Forthcoming events are also listed.

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