About Stargardt’s
Stargardt’s disease is an inherited progressive disease that affects the retina.
The disease causes a blurring of vision, especially the ability to see fine details, for example difficulty reading a book and recognising faces.
It is most commonly diagnosed in children and young adults, but can also be diagnosed in middle age and less often in older people. It affects approximately one in 10,000 people and therefore is classed as a rare condition.
There is currently no treatment or cure for Stargardt’s disease.
New booklet on Vitamin A and Stargardt's Disease
Thank you to RSBC and LSK productions for asking us to make a film sharing our diagnosis journey. #thelimitiswhatyouchoose
Stargardt’s Connected Community
This is a community! Our community includes people affected by Stargardt’s, clinicians, researchers, opticians and pharmaceutical industries.
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EVENTS
We have lots of events! We use these to raise awareness, provide support, build our community and raise funds. Pictures from recent events can be seen below. Forthcoming events are also listed.
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