Launch of Stargardt's Community Register

We’re excited to launch our Stargardt's Community Register. If you or someone in your family has Stargardt’s we’d love you to take a look. Click the button below to find out more.

Regular giving helps us do so much more

All our donations go directly towards our primary mission of raising awareness, providing support and seeking a cure.


Learn all about our fundraising and what you can do to join in and help!

Stargardt’s Connected Community

This is a community! Our community includes people affected by Stargardt’s, clinicians, researchers, opticians and pharmaceutical industries.

If you would like to contact us, contribute any ideas or suggestions to our website, please click on the button below.


Unfortunately, due to the current pandemic, we are unable to hold any face to face meet ups at the moment. However, we understand the importance of connecting with our community and so hold regular Zoom sessions for those affected by the condition. These are informal sessions and have proved really popular as we connect with people around the world sharing stories and tips.

We also hold separate fun informal Zoom sessions for children and young people with Stargardt’s.

If you would like to find out more or join our sessions, then please leave a message and we will get back to you.

We use events to raise awareness, provide support, build our community and raise funds. Pictures from previous events can be seen below. As and when we are able to have events again we will list them here on the website.

Event Recordings

You can view recordings of some of our recent Zoom sessions by following the links below:

Forthcoming Events

Children and Young People Zoom Session

This is for Children and Young People (CYP) aged 8-17 with Stargardt's. We are thrilled to have Paralympian Gold Medallist Tim Prendergast who has Stargardt’s to come and speak at...

Adult Zoom Session

We are holding a special Adult Zoom session on Saturday 16th October from 12-2pm UK time where we will be talking about an exciting new project. There will also be...