Stargardt’s disease is an inherited progressive disease that affects the retina.

The disease causes a blurring of vision, especially the ability to see fine details, for example difficulty reading a book and recognising faces.

It is most commonly diagnosed in children and young adults, but can also be diagnosed in middle age and less often in older people. It affects approximately one in 10,000 people and therefore is classed as a rare condition.

There is currently no treatment or cure for Stargardt’s disease.

Get in touch!

This is a community! Our community includes people affected by Stargardt’s, clinicians, researchers, opticians and pharmaceutical industries.

If you would like to contact us, contribute any ideas or suggestions to our website, please click on the button below.

Regular giving helps us do so much more

All our donations go directly towards our primary mission of raising awareness, providing support and seeking a cure.

Stargardt’s Community Register

If you or someone in your family has Stargardt’s we invite you to sign up to our Community Register. The Register exists to both help with connecting our community and also with supporting research into Stargardt's Disease. Click the button below to find out more.

If you have already registered and have asked to be connected to others in your area (optional), but have not yet heard from us, please get in touch here.


We are so pleased to have resumed our face to face meet ups again and we will post any of our upcoming events on the Events section of the website.

We know the importance of connecting with others affected by Stargardt's so our virtual Zoom Sessions and face to face meet ups are an excellent way to do so.

We hold regular Adult Zoom sessions and they have proved really popular as we connect with people around the world sharing stories and tips. We also have regular speakers, either from the Medical Professional community or members of the community affected by Stargardt's. You can watch the recordings of some of these sessions on our YouTube Channel

We also hold separate fun informal Zoom sessions for children and young people with Stargardt’s. This is a fantastic way for children and young people to chat to one another, play games and have fun!

If you would like to find out more or join our sessions, then please leave a message and we will get back to you.

Forthcoming Events

There are currently no events listed. Please check back soon.

Event Recordings

You can view recordings of some of our recent Zoom sessions by following the links below: