About Stargardt’s

Stargardt’s disease is an inherited progressive disease that affects the retina.

The disease causes a blurring of vision, especially the ability to see fine details, for example difficulty reading a book and recognising faces.

It is most commonly diagnosed in children and young adults, but can also be diagnosed in middle age and less often in older people. It affects approximately one in 10,000 people and therefore is classed as a rare condition.

There is currently no treatment or cure for Stargardt’s disease.

New booklet on Vitamin A and Stargardt's Disease

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Stargardt’s Connected Community

This is a community! Our community includes people affected by Stargardt’s, clinicians, researchers, opticians and pharmaceutical industries.

If you would like to contact us, contribute any ideas or suggestions to our website, please click on the button below.

Recent News

Alice’s story

Stargardt’s Connected achieves charity status

Sarah Stiffin and the London Marathon

Professor Michel Michaelides

Odette’s story

Art Therapy Session

Regular giving helps us do so much more

All our donations go directly towards our primary mission of raising awareness, providing support and seeking a cure.

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Add 25% more to your donation at no cost to you. A Gift Aid declaration allows Stargardt's Connected to claim tax back on eligible donations. It means that for every £1 you donate to Stargardt's Connected we can claim back 25p, at no extra cost to you.

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What is Gift Aid?

Gift Aid does not cost you a penny more, but can add an additional 25p to every £1 you donate. When Stargardt's Connected receives a donation from a UK taxpayer, we're entitled to claim an amount of tax (calculated at the basic rate of income tax in that year) paid on that donation. Once you have given your permission for us to do this on your behalf, there is no need for you to do anything else.

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EVENTS

We have lots of events! We use these to raise awareness, provide support, build our community and raise funds. Pictures from recent events can be seen below. Forthcoming events are also listed.

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MORE EVENTS

Stargardt's Connected

16 hours ago

A huge thank you 🙏 to St Josephs In The Park School for their very generous donation to Stargardts Connected. ... See MoreSee Less

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Likes: 26
Shares: 1
Comments: 2

Comment on Facebook

Wonderful. Absolutely Brilliant'

Fabulous xx

2 weeks ago

COULD YOU HELP US WIN £1000? 💷

The Ecclesiastical 12 Days of Giving aims to donate £1000 to 120 charities over 12 days in the run up to Christmas 🎄.

🌟 We'd love it if you could nominate Stargardt’s Connected for £1000 and enable us to deliver more activities and events for the Stargardt's Community and raise money for research.

All you need to do is complete the form on this link 👇👇https://www.ecclesiastical.com/movement-for-good/12-days/

You'll need our charity number which is 1183570. 🙏

The more nominations we receive the better chance we have of winning! Thank you. 😀 ... See MoreSee Less

Likes: 9
Shares: 9
Comments: 10

Done x

Done xx

Completed and shared xx

Done! Best of luck with this xx

Me too x

Done

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Thank you to St Joseph’s in the Park School for holding a fundraising non-uniform day for Stargardt’s Connected. 🙏

It was a pleasure doing a Stargardt’s Assembly to raise awareness of Stargardt’s to such a fab group of children. 😀 ... See MoreSee Less

Likes: 37
Shares: 3
Comments: 1

You’re amazing Bhavna! 😊