Event News

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Retina UK Professional and Annual Conference

Retina UK are holding their Professionals and Annual Conference at the University of Westminster Marylebone Campus, London on Friday 23rd June and Saturday 24th June respectively. These events are face-to-face as well as virtual, and are free to attend. We will have a stand on both days so please come and meet us. Details about…

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Art Therapy Session

“Inspiring, relaxing, fun and calming” were some of the words used to describe the Stargardt’s Connected Art Therapy session at the London Art Therapy Centre. Thank you to Elaine and Sarah for leading the session so brilliantly and to those who came. A super afternoon of amazing creative art.

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Social Meet Up November 2018

In November 2018, Stargardt’s Connected organised another pub meet up in London for the Stargardt’s community after the Sight Village Exhibition in Kensington. This was a fantastic opportunity for people to meet up, chat and share stories and tips.

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Nutrition Project and Art Therapy Session September 2018

In September 2018, Stargardt’s Connected organised a nutrition chat for Stargardt’s families. The discussion was led by Dr Rosie Gilbert from Moorfields Eye Hospital and Dr Andi Skilton from NIHR Biomedical Research Centre Moorfields Eye Hospital. A summary of the discussion can be found on the Nutrition Project page. Meanwhile, while the parents chatted, the…

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Hyde Park Picnic August 2018

We held our second picnic at the Hyde Park and we had people travel from far and near to join us. We even had Dave Ellis, a world champion para-triathlete, who came all the way from Derbyshire with his family to our picnic. It was wonderful to meet so many talented and inspirational people and…

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School Fundraiser

Bhavna Tailor’s son Ethan was keen to hold a Stargardt’s awareness and fundraising day at his school and she helped him organise a day of fundraising events. His fellow classmates were tasked to bake cakes for a cake sale. They got creative baking and here are a sample of the cakes they made. There was…

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