Stories

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Professor Michel Michaelides

Medical Advisor for Stargardt’s Connected Michel Michaelides BSc MB BS MD(Res) FRCOphth FACS is a Consultant Ophthalmologist at Moorfields Eye Hospital in the departments of Medical Retina, Genetics and Paediatric Ophthalmology; and is a Professor of Ophthalmology at the UCL Institute of Ophthalmology. He is a recipient of a Career Development Award from the Foundation…

Odette’s story

I first came to London in the mid-1980s from France to work as an au pair, which allowed me to spend my evenings taking part in dance classes at the London Contemporary Dance School. However, after a couple of years in the capital, I began to see bright sparkly spots in front of my eyes…

Bhavna’s story

In September 2015, my son Ethan was diagnosed with Stargardt’s disease when he was just seven years old; a condition we had never heard of. Being told that he was losing his eyesight and that there was no cure or treatment for Stargardt’s disease was the most devastating news we had ever been given. Despite…

Toby’s story

I was diagnosed with Stargardt’s in my mid-teens. It was a big blow, especially as I had to give up my beloved ball sports as my sight deteriorated. Strangely as it now seems, though, I decided to keep my condition secret from my friends and teachers for a long time, and pretend nothing was wrong.…

Robert’s story

I was diagnosed with Stargardt’s in the summer of 1981, shortly before my 21st birthday. On the day of diagnosis I was given the option to be registered partially sighted but declined the offer. I was also informed that, as of that day, I was not allowed to drive anymore; the latter being the hardest…

Yvonne’s story

There are several unique experiences peculiar to living with Stargardt’s disease; some very personal and others played out quite publicly. Through these experiences I learn the truths that mould and guide my existence. Like most Stargardters, I recall needing to look at my classmates’ notes to get what was on the board at around the…

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