News
International Day of Persons with Disabilities
Disability inclusion is an essential part in achieving the Sustainable Development Goals (SDGs). According to WHO, around 1.3 billion people or 16% of the total world’s population experience disability of any kind. There is an increasing trend in these numbers because of the rise of non-communicable diseases and higher life expectancy. The International Day of…
Sindhu’s story
I am Sindhu from India. I was diagnosed with Stargardt’s when I was 18 years old, back in 2020. I had just completed my school and was preparing for undergrad entrance exams, when my father noticed that I was reading through the book keeping it too close to my eyes. After doing the fundus photography,…
World Sight Day 2023
Around one billion people in the world suffer due to an untreated or preventable vision loss. To focus global attention on visual impairment, blindness and significance of eye health, the World Sight Day was observed for the first time on 12th October 2000. This day is observed on the second Thursday of October every year. It…
Fight for Sight and Stargardt’s Connected Joint Small Grant Award
We are pleased to be able to partner with Fight For Sight this year for the Small Grant Award Scheme. The Award is now open for applications for our Stargardt’s Research Community, with the deadline of 13:00 on Wednesday 13 September 2023. Please do share this amongst your research networks and to anyone who may…
Belite Bio Trial update
The Dragon Study Phase 3, Multicenter, Randomized, Double-Masked, Placebo-Controlled Study to Evaluate the Safety and Efficacy of Tinlarebant in the Treatment of Stargardt Disease in Adolescent Subjects. The closing date for recruitment to the Phase 3 Belite Bio Trial is due to finish end of June 2023 and the age range to extend up to…
Global survey of potential participant perspectives on ocular gene therapy
A research team from Melbourne, Australia, has developed a new questionnaire on gene therapy for inherited retinal disease, known as the Attitudes to Gene Therapy for the Eye (AGT-Eye) survey. They have completed an Australian study, in which almost 700 people with inherited retinal disease provided their views on gene therapies. You can see the…
