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Sarah Stiffin and the London Marathon

We are extremely grateful and excited for Sarah Stiffin who is running the London Marathon for Stargardt’s Connected. Please support Sarah and the work we do by donating here: https://www.justgiving.com/crowdfunding/sarah-stiffin All money raised will go towards supporting our Mission Statement: raising awareness, giving support, seeking a cure.

Professor Michel Michaelides

Medical Advisor for Stargardt’s Connected Michel Michaelides BSc MB BS MD(Res) FRCOphth FACS is a Consultant Ophthalmologist at Moorfields Eye Hospital in the departments of Medical Retina, Genetics and Paediatric Ophthalmology; and is a Professor of Ophthalmology at the UCL Institute of Ophthalmology. He is a recipient of a Career Development Award from the Foundation…

Odette’s story

I first came to London in the mid-1980s from France to work as an au pair, which allowed me to spend my evenings taking part in dance classes at the London Contemporary Dance School. However, after a couple of years in the capital, I began to see bright sparkly spots in front of my eyes…

Art Therapy Session

“Inspiring, relaxing, fun and calming” were some of the words used to describe the Stargardt’s Connected Art Therapy session at the London Art Therapy Centre. Thank you to Elaine and Sarah for leading the session so brilliantly and to those who came. A super afternoon of amazing creative art.

Bhavna’s story

In September 2015, my son Ethan was diagnosed with Stargardt’s disease when he was just seven years old; a condition we had never heard of. Being told that he was losing his eyesight and that there was no cure or treatment for Stargardt’s disease was the most devastating news we had ever been given. Despite…

Toby’s story

I was diagnosed with Stargardt’s in my mid-teens. It was a big blow, especially as I had to give up my beloved ball sports as my sight deteriorated. Strangely as it now seems, though, I decided to keep my condition secret from my friends and teachers for a long time, and pretend nothing was wrong.…

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