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Living with Stargardt’s — transition from India to the UK

Stargardt’s disease, a rare genetic disorder that causes central vision loss in both eyes has shaped my life with challenges and adaptations. My experiences of living with Stargardt’s disease changed…

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Ellen Gould — Seeing Stars

Ellen Gould, an Emmy-Award winning actress with Stargardt’s speaking about her upcoming film, “Seeing Stars” which is about five women with Stargardt’s. Here’s the link where you can find out…

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Life of a Student

A significant percentage of disabled people have to deal with hidden or invisible disabilities which makes it super challenging to perform daily activities. An invisible disability, such as Stargardt’s disease…

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International Day of Persons with Disabilities

Disability inclusion is an essential part in achieving the Sustainable Development Goals (SDGs). According to WHO, around 1.3 billion people or 16% of the total world’s population experience disability of…

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Sindhu’s story

I am Sindhu from India. I was diagnosed with Stargardt’s when I was 18 years old, back in 2020. I had just completed my school and was preparing for undergrad…

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World Sight Day 2023

Around one billion people in the world suffer due to an untreated or preventable vision loss. To focus global attention on visual impairment, blindness and significance of eye health, the World…

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