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Rob in Lockdown

Rob McCann, one of our Stargardt’s Connected Trustees, needed to find something to occupy himself at the start of lockdown. What started out feeling like an abundance of free time to go on long walks, after a while felt like a daily grind. Perhaps surprising for someone with a sight-loss condition, Rob began to teach…

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Alice’s story

I first experienced problems with my sight at 22, when I was in the middle of a degree in Vocal Studies at the Royal Northern College of Music. I had noticed problems finding my friends in busy places and had a few scary moments when driving, so I went for a routine eye test, thinking…

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Stargardt’s Connected achieves charity status

We are absolutely thrilled to announce that Stargardt’s Connected is now a Registered Charity – the first Stargardt’s charity in the UK! We are extremely proud to have achieved this and know that it will open so many doors to help reach our mission statement of raising awareness, giving support and seeking a cure. If…

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Sarah Stiffin and the London Marathon

We are extremely grateful and excited for Sarah Stiffin who is running the London Marathon for Stargardt’s Connected. Please support Sarah and the work we do by donating here: https://www.justgiving.com/crowdfunding/sarah-stiffin All money raised will go towards supporting our Mission Statement: raising awareness, giving support, seeking a cure.

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Professor Michel Michaelides

Medical Advisor for Stargardt’s Connected Michel Michaelides BSc MB BS MD(Res) FRCOphth FACS is a Consultant Ophthalmologist at Moorfields Eye Hospital in the departments of Medical Retina, Genetics and Paediatric Ophthalmology; and is a Professor of Ophthalmology at the UCL Institute of Ophthalmology. He is a recipient of a Career Development Award from the Foundation…

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Odette’s story

I first came to London in the mid-1980s from France to work as an au pair, which allowed me to spend my evenings taking part in dance classes at the London Contemporary Dance School. However, after a couple of years in the capital, I began to see bright sparkly spots in front of my eyes…

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