Global survey of potential participant perspectives on ocular gene therapy

A research team from Melbourne, Australia, has developed a new questionnaire on gene therapy for inherited retinal disease, known as the Attitudes to Gene Therapy for the Eye (AGT-Eye) survey. They have completed an Australian study, in which almost 700 people with inherited retinal disease provided their views on gene therapies. You can see the results of the study here.

Now, they wish to expand this globally, to collect the views of those living in other countries.

If you have an inherited retinal disease or a carer for someone with an inherited retinal disease, you are invited to complete a survey on your knowledge and expectations regarding future gene therapy trials for inherited retinal diseases. You will read an on-line consent form and then continue to the survey. At the end of the survey you can indicate if you would like to receive a summary of the results at the end of the study (anticipated 2024), and if you would like to participate in future online research of this nature.

This research project has been approved by the Human Research Ethics Committee of The University of Melbourne (ID 25634).

Thank you for considering participating. If you would like to be involved, please visit
https://www.cera.org.au/survey-global-survey-of-potential-participant-perspectives-on-ocular-gene-therapy/