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Retina U.K. Conference

Retina U.K are holding their Professionals and Annual Conference in Birmingham on Friday 8th July and Saturday 9th July respectively. This will be face to face as well as virtual. Topics such as the Clinical trials process, research, technology for everyday living will be covered. We will have a stand on both days so please…

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Sight Village Birmingham

We will be having a stand at the Sight Village Birmingham on Tuesday June 28th and Wednesday June 29th so come and meet us to say Hello. Sight Village is an exhibition showcasing the latest technology, products and support services for visually impaired people. More details about Sight Village Exhibition can be found here:–2022/1.htm#.Yp3ww_PMK00

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Brian Morris

It is with great sadness that we announce the death of our oldest Stargardt’s Connected member, Brian Morris who died earlier this year at the age of 92. He was a regular member of our Adult Zoom sessions and his family reported that he enjoyed them thoroughly. Brian received his diagnosis of Stargardt’s Disease in…

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Running the London Marathon

Thank you so much Greg George for running the 2021 London Marathon on October 3rd to raise funds for Stargardt’s Connected. We are the first and only UK solely Stargardt’s Charity and are committed to raising money for research and support. Please show your support and share and donate if you can. Thank you! Donate…

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Paul’s story

I’m Paul Appleyard and I am a part time blogger with Stargardt’s Disease who loves to encourage others to aim high and chase their dreams — especially visually impaired people. I am really excited to join the Stargardt’s Connected team and add my two-pennyworth as someone who has had Stargardt’s since 1979. If you can indulge…

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Katriona’s story

When I was seven years old at school the teachers noticed that I wasn’t reading the board easily and sent me off to have some eye tests. Nothing obvious showed up so we then went to see an eye specialist. In fact we saw two eye specialists before I was properly diagnosed. The first telling…

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