Ellen Gould — Seeing Stars

Ellen Gould, an Emmy-Award winning actress with Stargardt’s speaking about her upcoming film, “Seeing Stars” which is about five women with Stargardt’s. Here’s the link where you can find out…

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Life of a Student

A significant percentage of disabled people have to deal with hidden or invisible disabilities which makes it super challenging to perform daily activities. An invisible disability, such as Stargardt’s disease…

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World Sight Day 2023

Around one billion people in the world suffer due to an untreated or preventable vision loss. To focus global attention on visual impairment, blindness and significance of eye health, the World…

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Belite Bio Trial update

The Dragon Study Phase 3, Multicenter, Randomized, Double-Masked, Placebo-Controlled Study to Evaluate the Safety and Efficacy of Tinlarebant in the Treatment of Stargardt Disease in Adolescent Subjects. The closing date…

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Points of Light award

We are delighted to announce that the founder of Stargardt’s Connected, Bhavna Tailor, has been awarded the Prime Minister’s Points of Light Award in recognition for setting up Stargardt’s Connected…

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Professor Frans P. M. Cremers

Professor of Ophthalmogenetics in the Department of Human Genetics in the Radboudumc in Nijmegen, The Netherlands Professor Cremers obtained his doctorate in Nijmegen in 1991, entitled ‘Positional cloning of a…

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