Points of Light award

blue star

We are delighted to announce that the founder of Stargardt’s Connected, Bhavna Tailor, has been awarded the Prime Minister’s Points of Light Award in recognition for setting up Stargardt’s Connected and for helping to raise awareness of Stargardt’s and supporting the community.

Stargardt’s Disease is a rare inherited eye condition affecting approximately 1 in 10,000 people. It causes progressive central vision loss and there is no current treatment or cure.

Bhavna said:

I am absolutely thrilled and honoured to have received the Points of Light award. It is particularly poignant to receive this on World Rare Disease Day as Stargardt’s Connected supports those with the rare eye condition Stargardt’s. This award will definitely help raise awareness of Stargardt’s and I’m extremely grateful to the Prime Minister and his team in giving me the award!

We are the only Stargardt’s Charity in the UK and have grown immensely and now have a global reach. We provide advice and information, connect the community with face-to-face and virtual meet-ups, and have set up a patient register. We aim to raise awareness as well as fundraise for support and research.

Through the charity I have met so many inspiring people and want to thank our wonderful Stargardt’s community and my fantastic board of Trustees, mentor, volunteers and fundraisers for their continuous support. We are a small but mighty charity, putting our community at the heart of our work and are excited for our journey ahead.

Congratulations to Bhavna! You can read more about the award here: https://www.pointsoflight.gov.uk/stargardts-connected/