Today, October 14th is WORLD SIGHT DAY and this year we are extremely excited to launch our GLOBAL STARGARDT’S COMMUNITY REGISTER.
The purpose of the register includes helping to bring our community together, understand how Stargardt’s affects different people and collect vital information that may help further research.
On World Sight Day, our call to action is to ask people affected by Stargardt’s to join the register.
The larger and more complete the register, the more valuable and relevant it will be.
Here is the link to the register which you can also find on our website. See Link in Bio.
stargardtsconnected.org.uk/community-register/
To mark this occasion, we are holding a special Zoom this Saturday 16th October
12pm-2pm UK time.
At the Zoom, we are really pleased to be joined by Dr Thales AC de Guimaraes from Moorfields Eye Hospital to speak about the value of the register to research. We will also have James Burden, our web developer who has built the register who will be able to answer any questions you have about using the register.
In the second half, you will have the opportunity to connect and chat to one another in smaller breakout sessions.
Here is the link to join:
You are invited to a Zoom meeting.
When: Oct 16, 2021 12:00 PM London
Register in advance for this meeting:
us02web.zoom.us/meeting/register/tZ0oc-GspzkrGNDrquIK8CBYEsvMn3h5KFub
We hope you can join us!
PD: Picture of part of the Register Form. There is a picture of Professor Michaelides on the left with a message from him on the right about the community register.
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