Event Video Sessions

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Many of our meetings are now held on Zoom. We often record these and you can view these via the links below.

Genetic and clinical variability of the Stargardt disease gene ABCA4, and the implications for treatment

A huge thank you to our Professor Rando Allikmets who recently joined our Zoom session to talk to us about genetic and clinical variability of the Stargardt disease gene ABCA4, and the implications for treatment.

Charles Bonnet Syndrome, Stargardt’s and genetics

We were very grateful to have Professor Mariya Moosajee, Consultant Ophthalmologist from Moorfields Eye Hospital to speak at one of our Stargardt’s Connected Zoom sessions. She spoke about her Charles Bonnet Syndrome, her website gene.vision and Stargardt’s and genetics.

Research Update

A huge thank you to our medical adviser Professor Michel Michaelides from Moorfields Eye Hospital and Institute of Ophthalmology, UCL who recently joined our Zoom session to give a Stargardt’s research update and hold a question and answer session.

Low Vision Accessible Technology

We were very excited to have Hannah Dunbar Senior Low Vision Optometrist to speak at our Zoom sessions. She gave an excellent overview of different types of low vision accessible technology.

EHCP Process and Good Practice in the Classroom

We were very grateful to have Caireen Sutherland Principal Education Officer from RNIB and Sian Muggridge VI teacher join our Parents Zoom session and talk about the EHCP process, good practice in the classroom and Educational Specialists you may come across.