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Useful Links

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For further information and support concerning Stargardt's disease you can also visit:

The Macular Society (​https://www.macularsociety.org/)
Helpline: 0300 3030 111

Retina UK (https://retinauk.org.uk/)
Helpline: 0845 123 2354

Victa Parental Portal (https://www.victaparents.org.uk/)

News from our Faceboook page

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Stargardt's Connected

2 weeks ago

Stargardt's Connected

✨ SAVE THE DATE ✨

I'm excited to announce that our very first Stargardt's Connected conference will be on 4th July in London.

Put the date in your diary and we'll let you have lots more info soon.😃 ... See MoreSee Less

✨ SAVE THE DATE ✨ Im excited to announce that our very first Stargardts Connected conference will be on 4th July in London. Put the date in your diary and well let you have lots more info soon.😃
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Stargardt's Connected

2 weeks ago

Stargardt's Connected

I was very excited recently to attend the Findacure workshop on “Leading a Rare Patient Group ”.

It was great to speak to other rare disease charities and know the importance of having a patient organisation to help raise awareness, funds, give support and a voice to a rare community.

As Findacure says, “There are 7000 rare diseases and 1 common goal”. ... See MoreSee Less

I was very excited recently to attend the Findacure workshop on “Leading a Rare Patient Group ”. It was great to speak to other rare disease charities and know the importance of having a patient organisation to help raise awareness, funds, give support and a voice to a rare community. As Findacure says, “There are 7000 rare diseases and 1 common goal”.
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Stargardt's Connected

3 weeks ago

Stargardt's Connected

There are some lovely recipes on our website provided by Chef David Rowles from Cookery Uncovered. David ran our cookery sessions back in October and we're hoping to run some more this year.

Vegetarian Paella anyone? 😃

Click below for the recipes 👇
stargardtsconnected.org.uk/vegetarian-paella/ ... See MoreSee Less

There are some lovely recipes on our website provided by Chef David Rowles from Cookery Uncovered. David ran our cookery sessions back in October and were hoping to run some more this year. Vegetarian Paella anyone? 😃 Click below for the recipes 👇 https://stargardtsconnected.org.uk/vegetarian-paella/
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