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You are here: Home > About > Useful links

Useful Links

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For further information and support concerning Stargardt's disease you can also visit:

The Macular Society (​https://www.macularsociety.org/)
Helpline: 0300 3030 111

Retina UK (https://retinauk.org.uk/)
Helpline: 0845 123 2354

Victa Parental Portal (https://www.victaparents.org.uk/)

News from our Faceboook page

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Stargardt's Connected

3 weeks ago

Stargardt's Connected

✨ £4,349 ✨

That's how much Hertfordshire Specsavers raised for us with their recent fundraising initiative.

How amazing is that?!

Thank you so much Specsavers. 😍

Picture description: Specsavers staff, Ketan Patel, Ethan, Elise and Bhavna standing outside a Specsavers store ... See MoreSee Less

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Tring Specsavers raises money for Stargardt's Connected

www.hemeltoday.co.uk

The money was raised for people and families suffering from Stargardt disease
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Stargardt's Connected

4 weeks ago

Stargardt's Connected

Today is International Women's Day and the theme is #EachforEqual

An equal world is an enabled world.

Individually, we're all responsible for our own thoughts and actions - all day, every day.

We can actively choose to challenge stereotypes, fight bias, broaden perceptions, improve situations and celebrate women's achievements.

Collectively, each one of us can help create an equal world.

Let's all be #EachforEqual.#IWD2020 ... See MoreSee Less

Today is International Womens Day and the theme is #EachforEqual An equal world is an enabled world. Individually, were all responsible for our own thoughts and actions - all day, every day. We can actively choose to challenge stereotypes, fight bias, broaden perceptions, improve situations and celebrate womens achievements. Collectively, each one of us can help create an equal world. Lets all be #EachforEqual.#iwd2020
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Stargardt's Connected

4 weeks ago

Stargardt's Connected

I was excited to attend Rare Disease UK’s reception at the Houses of Parliament to celebrate the recent Rare Disease Day.

It was great to meet other rare disease advocates but also to learn that collectively rare diseases are not rare at all. They affect around 300 million people worldwide!

Image: Bhavna at the House of Common’s Terrace wearing a black dress with burgundy and cream polka dots. ... See MoreSee Less

I was excited to attend Rare Disease UK’s reception at the Houses of Parliament to celebrate the recent Rare Disease Day. It was great to meet other rare disease advocates but also to learn that collectively rare diseases are not rare at all. They affect around 300 million people worldwide! Image: Bhavna at the House of Common’s Terrace wearing a black dress with burgundy and cream polka dots.
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