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You are here: Home > About > Useful links

Useful Links

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For further information and support concerning Stargardt's disease you can also visit:

The Macular Society (​https://www.macularsociety.org/)
Helpline: 0300 3030 111

Retina UK (https://retinauk.org.uk/)
Helpline: 0300 111 4000

Victa Parental Portal (https://www.victaparents.org.uk/)

News from our Faceboook page

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Stargardt's Connected
1 week ago
Stargardt's Connected

What a fun virtual cooking global Zoom session we had today. The children did a fantastic job of making their own pancakes from scratch. They looked delicious! Well done all. The best part they said- was eating them!

P.D.: A Zoom Screenshot of Bhavna and Saffron Hirst], the different yummy pancakes with toppings of honey, Nutella and Chocolate spread and bananas.

Saffron Hirst]
@kams_view

#StargardtsConnected #JuvenileMacularDystrophy #Stargardt #Stargardts #VirtualCookingSession #PancakesOnZoom
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What a fun virtual cooking global Zoom session we had today. The children did a fantastic job of making their own pancakes from scratch. They looked delicious! Well done all. The best part they said- was eating them!  

P.D.: A Zoom Screenshot of Bhavna and Saffron Hirst], the different yummy pancakes with toppings of honey, Nutella and Chocolate spread and bananas. 

Saffron Hirst] 
@kams_view 

#StargardtsConnected #JuvenileMacularDystrophy #Stargardt #Stargardts #VirtualCookingSession #PancakesOnZoom
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Stargardt's Connected
1 week ago
Stargardt's Connected

We are holding our Children and Young People’s Virtual Zoom cooking session this Saturday 14th May at 10:30am U.K. time, where we will be making yummy pancakes! What toppings will you choose to put on?

Here is the link to register:

us02web.zoom.us/meeting/register/tZYpcuuspj4oHNWZxhbX_e696XXG2x-byU__

#StargardtsConnected #Stargardt #Stargardts #VirtualCookingSession
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We are holding our Children and Young People’s Virtual Zoom cooking session this Saturday 14th May at 10:30am U.K. time, where we will be making yummy pancakes! What toppings will you choose to put on? 

Here is the link to register:

https://us02web.zoom.us/meeting/register/tZYpcuuspj4oHNWZxhbX_e696XXG2x-byU__

#StargardtsConnected #Stargardt #Stargardts #VirtualCookingSession
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Stargardt's Connected
2 weeks ago
Stargardt's Connected

R.I.P. Brian Morris
It is with great sadness that we announce the death of our oldest Stargardt’s Connected member, Brian Morris who died earlier this year at the age of 92.
He was a regular member of our Adult Zoom sessions and his family reported that he enjoyed them thoroughly. Brian received his diagnosis of Stargardt’s Disease in 2021 at the age of 91, after deciding to be genetically tested following our Zoom Session with Prof @mariyamoosajee , who was encouraging all patients to do so. Prior to that he had been told he had Junior Macular Dystrophy.
Brian was a trained solicitor and his wife Libby says, “With the help of various audio-visual aids and 'readers' he was able to continue his work as a solicitor until the age 82. He had the most wonderful memory and mind, so loved a challenge. We used to describe his 'speciality' in the law as 'Ye Olde Family Solicitor' - a dinosaur, because he tackled everything. Much of Brian's last few years in legal practice included helping clients to deal with the Licensing Act 2003”.

We want to say a big thank you to the family for kindly sending donations in his memory from his funeral to Stargardt's Connected. Brian will be really missed and our thoughts and prayers are with the family.

PD: The photo shows Brian and his daughter Frankie on a 3 wheeled bicycle that was loaned to them by 'Charlotte's Tandems'.

@mariyamoosajee

#StargardtsConnected #StargardtsDisease #Stargardt #JuniorMacularDystrophy
... See MoreSee Less

R.I.P. Brian Morris
It is with great sadness that we announce the death of our oldest Stargardt’s Connected member, Brian Morris who died earlier this year at the age of 92.
He was a regular member of our Adult Zoom sessions and his family reported that he enjoyed them thoroughly. Brian received his diagnosis of Stargardt’s Disease in 2021 at the age of 91, after deciding to be genetically tested following our Zoom Session with Prof @mariyamoosajee , who was encouraging all patients to do so. Prior to that he had been told he had Junior Macular Dystrophy.
Brian was a trained solicitor and his wife Libby says, “With the help of various audio-visual aids and readers he was able to continue his work as a solicitor until the age 82. He had the most wonderful memory and mind, so loved a challenge. We used to describe his speciality in the law as Ye Olde Family Solicitor - a dinosaur, because he tackled everything. Much of Brians last few years in legal practice included helping clients to deal with the Licensing Act 2003”.

We want to say a big thank you to the family for kindly sending donations in his memory from his funeral to Stargardts Connected. Brian will be really missed and our thoughts and prayers are with the family. 

PD: The photo shows Brian and his daughter Frankie on a 3 wheeled bicycle that was loaned to them by Charlottes Tandems.  

@mariyamoosajee 

#StargardtsConnected #StargardtsDisease #Stargardt #JuniorMacularDystrophy
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