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Useful Links

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For further information and support concerning Stargardt's disease you can also visit:

The Macular Society (​https://www.macularsociety.org/)
Helpline: 0300 3030 111

Retina UK (https://retinauk.org.uk/)
Helpline: 0300 111 4000

Victa Parental Portal (https://www.victaparents.org.uk/)

News from our Faceboook page

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Stargardt's Connected
2 days ago
Stargardt's Connected

THIS SUNDAY IS CENSUS DAY!
Don’t forget to complete online if you can, it is accessible with screen readers on PC, MAC, iOS and android devices. Feedback from the VI community has been good so far, it saves as you go along, but allow time to complete the questions.
Telephone suport: 0800 141 2021 Find out more, including video help : census.gov.uk/.../languages-and.../accessibility You can also ask for your unique 16 digit access code by text instead of trying to find it on your letter. census.gov.uk/en/request/access-code/enter-address/

#Census2021 #accessiblecensus
(Image shows one of our members who has Stargardts, sitting at a desk looking at a MAC computer about to start the Census 2021 online using accessibility features. Vicky has dark hair and is wearing anti-glare screen glasses and over ear headphones.)
... See MoreSee Less

THIS SUNDAY IS CENSUS DAY!
Don’t forget to complete online if you can, it is accessible with screen readers on PC, MAC, iOS and android devices.  Feedback from the VI community has been good so far, it saves as you go along, but allow time to complete the questions. 
Telephone suport:   0800 141 2021   Find out more, including video help : https://census.gov.uk/.../languages-and.../accessibility   You can also ask for your unique 16 digit access code by text instead of trying to find it on your letter. https://census.gov.uk/en/request/access-code/enter-address/

#Census2021  #accessiblecensus
(Image shows one of our members who has Stargardts, sitting at a desk looking at a MAC computer about to start the Census 2021 online using accessibility features. Vicky has dark hair and is wearing anti-glare screen glasses and over ear headphones.)
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Stargardt's Connected
2 days ago
Stargardt's Connected

Amazing portrait! Thanks so much Anna Judge, Jill Nalder (the inspiration behind the hit C4 Series It’s a Sin) and WestEnders, for raising awareness of Stargardt’s and helping to fundraise for Stargardt's Connected! 💕
Picture Description: Jill Nalder smiling holding a winning portrait of herself drawn by artist Anna Judge.We love this winning picture from Sky TV Portrait Artist of the Week...beautifully capturing our own Jill by Anna Judge...find her on Insta @annajudgeart. We also know that the artist has a connection to the Stargardts Connected charity. stargardtsconnected.org.uk/

Stargardt’s disease is an inherited progressive disease that affects the retina.

The disease causes a blurring of vision, especially the ability to see fine details, for example difficulty reading a book and recognising faces.

It is most commonly diagnosed in children and young adults, but can also be diagnosed in middle age and less often in older people. It affects approximately one in 10,000 people and therefore is classed as a rare condition.

There is currently no treatment or cure for Stargardt’s disease.

Please click through and give whatever you can to this charity offering help and support to those affected by this hidden disability.

Thank you.

stargardtsconnected.org.uk/donate/
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Amazing portrait! Thanks so much Anna Judge, Jill Nalder (the inspiration behind the hit C4 Series It’s a Sin) and WestEnders, for raising awareness of Stargardt’s and helping to fundraise for Stargardts Connected! 💕
Picture Description: Jill Nalder smiling holding a winning portrait of herself drawn by artist Anna Judge.
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Stargardt's Connected
3 days ago
Stargardt's Connected

Stargardt’s Connected are holding their Children and Young People’s Zoom Session this Saturday 20th March 11-12pm This is for any Child or Young Person aged 8-17 with Stargardt’s. This is a fantastic opportunity for children and young people with Stargardt’s to get together informally and have fun and share experiences. In this session we will have a bit of an Easter theme to our quiz and will be introducing our Easter Design Competition.

Register in advance for this meeting:
us02web.zoom.us/meeting/register/tZMkc-uvqDsiHdNwuxNWTLazFHDm7gfVItyD
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Stargardt’s Connected are holding their Children and Young People’s Zoom Session this Saturday 20th March 11-12pm This is for any Child or Young Person aged 8-17 with Stargardt’s. This is a fantastic opportunity for children and young people with Stargardt’s to get together informally and have fun and share experiences. In this session we will have a bit of an Easter theme to our quiz and will be introducing our Easter Design Competition.

Register in advance for this meeting:
https://us02web.zoom.us/meeting/register/tZMkc-uvqDsiHdNwuxNWTLazFHDm7gfVItyD
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