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Useful Links

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For further information and support concerning Stargardt's disease you can also visit:

The Macular Society (​https://www.macularsociety.org/)
Helpline: 0300 3030 111

Retina UK (https://retinauk.org.uk/)
Helpline: 0300 111 4000

Victa Parental Portal (https://www.victaparents.org.uk/)

News from our Faceboook page

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Stargardt's Connected
2 days ago
Stargardt's Connected

Don’t forget to purchase our 2024 Animal Themed Fundraising Calendar.

Photos taken by our lovely
members of our community with Stargardt’s.

Money raised goes towards our mission of raising awareness, giving support and seeking a cure.

They make great Xmas presents too and cost of calendar is £10 plus postage and packaging.

Stock is limited!

Here’s the link to purchase:

stargardtsconnected.org.uk/product/stargardts-connected-calendar-2024/

PD1: Front cover of calendar with range of animal photos. Black text on white background in centre says: 2024 Calendar, Limited stock, Buy yours today!

#StargardtsConnected #Stargardts #CalendarCompetition #Calendar2024 #AnimalCalendar
#CharityCalendar #FundraisingCalendar ... See MoreSee Less

Don’t forget to purchase our 2024 Animal Themed Fundraising Calendar. Photos taken by our lovely members of our community with Stargardt’s. Money raised goes towards our mission of raising awareness, giving support and seeking a cure. They make great Xmas presents too and cost of calendar is £10 plus postage and packaging. Stock is limited! Here’s the link to purchase: https://stargardtsconnected.org.uk/product/stargardts-connected-calendar-2024/ PD1: Front cover of calendar with range of animal photos. Black text on white background in centre says: 2024 Calendar, Limited stock, Buy yours today! #StargardtsConnected #Stargardts #CalendarCompetition #Calendar2024 #AnimalCalendar #CharityCalendar #FundraisingCalendar
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Live in south africa

Stargardt's Connected
1 week ago
Stargardt's Connected

Come join us for our Stargardt’s Connected Xmas social!

When: Tuesday 12th December
Time: 6pm onwards
Where: O’ Neill’s Pub Kings Cross
73–77 Euston Road
London
NW1 2QS
(Corner of Judd Street)
5 min walk from Kings Cross Station
We will provide sharing platters and nibbles; drinks to be purchased by individuals.

Please let the us know if you will be attending by emailing [email protected]

We hope you can join us.

PD: picture of front of O’Neill’s Pub.
In the centre is a written O’ Neill’s going downwards against a blue background. The bottom of the building is painted blue. The rest of the brick building is white

#StargardtsConnected #StargardtsSocial #StargardtsXmasMeetUp #ONeills ... See MoreSee Less

Come join us for our Stargardt’s Connected Xmas social! When: Tuesday 12th December Time: 6pm onwards Where: O’ Neill’s Pub Kings Cross 73–77 Euston Road London NW1 2QS (Corner of Judd Street) 5 min walk from Kings Cross Station We will provide sharing platters and nibbles; drinks to be purchased by individuals. Please let the us know if you will be attending by emailing events@stargardtsconnected.org.uk We hope you can join us. PD: picture of front of O’Neill’s Pub. In the centre is a written O’ Neill’s going downwards against a blue background. The bottom of the building is painted blue. The rest of the brick building is white #StargardtsConnected #StargardtsSocial #StargardtsXmasMeetUp #ONeills
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Stargardt's Connected
4 weeks ago
Stargardt's Connected

A fantastic and very productive session at the Thomas Pocklington Trust Hub working with the wonderful Chloe Joyner from @usherkidsuk. We have been busy creating condition specific resources for our Education Toolkit which we will be launching in the new year! This will be for families and professionals.

Thank you to @thomas_pocklington_trust for supporting us with a grant to enable this project.

PD1: Chloe and Bhavna sitting at a desk. Chloe is wearing a black top and Bhavna is wearing a blue top and they are both smiling.
PD2: Bhavna and Chloe are standing smiling in front of a cream wall. On the wall in blue lettering is written “Pocklington Hub… part of Thomas Pocklington Trust”.

@usherkidsuk
@thomas_pocklington_trust

#StargardtsConnected #UsherKidsUK #Stargardts #UsherSyndrome #Collaboration #PartnershipWork #WorkingTogether #JointWorking #TPT #ThomasPocklingtonTrust #RareButNotAlone #InheritedRetinalDisease ... See MoreSee Less

A fantastic and very productive session at the Thomas Pocklington Trust Hub working with the wonderful Chloe Joyner from @usherkidsuk. We have been busy creating condition specific resources for our Education Toolkit which we will be launching in the new year! This will be for families and professionals. Thank you to @thomas_pocklington_trust for supporting us with a grant to enable this project. PD1: Chloe and Bhavna sitting at a desk. Chloe is wearing a black top and Bhavna is wearing a blue top and they are both smiling. PD2: Bhavna and Chloe are standing smiling in front of a cream wall. On the wall in blue lettering is written “Pocklington Hub… part of Thomas Pocklington Trust”. @usherkidsuk @thomas_pocklington_trust #StargardtsConnected #UsherKidsUK #Stargardts #UsherSyndrome #Collaboration #PartnershipWork #WorkingTogether #JointWorking #TPT #ThomasPocklingtonTrust #RareButNotAlone #InheritedRetinalDiseaseImage attachment
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