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Social Meet Up November 2018

In November 2018, Stargardt’s Connected organised another pub meet up in London for the Stargardt’s community after the Sight Village Exhibition in Kensington. This was a fantastic opportunity for people to meet up, chat and share stories and tips.

Nutrition Project and Art Therapy Session September 2018

In September 2018, Stargardt’s Connected organised a nutrition chat for Stargardt’s families. The discussion was led by Dr Rosie Gilbert from Moorfields Eye Hospital and Dr Andi Skilton from NIHR Biomedical Research Centre Moorfields Eye Hospital. A summary of the discussion can be found on the Nutrition Project page. Meanwhile, while the parents chatted, the…

Hyde Park Picnic August 2018

We held our second picnic at the Hyde Park and we had people travel from far and near to join us. We even had Dave Ellis, a world champion para-triathlete, who came all the way from Derbyshire with his family to our picnic. It was wonderful to meet so many talented and inspirational people and…

School Fundraiser

Bhavna Tailor’s son Ethan was keen to hold a Stargardt’s awareness and fundraising day at his school and she helped him organise a day of fundraising events. His fellow classmates were tasked to bake cakes for a cake sale. They got creative baking and here are a sample of the cakes they made. There was…

Goalball Session June 2018

In June 2018, Stargardt’s Connected organised a Goalball taster session run by Kathryn Fielding from Goalball UK. It was a fun-filled active session and we were fortunate to have Antonia Bunyan join us and play. She has Stargardt’s and is part of the GB Goalball team.

Fundraising Coffee Morning

One of the lovely school mum friends offered to hold a coffee morning to raise money for Stargardt’s Connected. It’s always good to talk, drink tea and have cake… An easy and sociable way to raise money too!