Stargardt’s Landscape Review Paper

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We are very excited to announce the publication of the Stargardt’s landscape review paper “Stargardt’s Connected Research Inaugural Meeting: Landscape Review and Horizon Scanning of Stargardt Disease” in the TVST journal. 

The review presents the proceedings of the inaugural Stargardt’s Connected Research Network Meeting held in November 2024 in collaboration with clinicians, researchers, industry partners and patient representatives. 

The paper outlines the current research landscape, including developing treatments, diagnosis and management of the condition. The comprehensive landscape audit includes research information from education, emotional impact to technological advances.

The paper sets out clear priorities and calls to action including: 

  • Enhancing genetic testing and interpretation 
  • Advancing research registries 
  • Encouraging patient partnership in research and clinical trials 
  • Supporting multidisciplinary care 
  • Addressing lifestyle and dietary modifications
  • Enhancing technological support 

Read the full paper here: https://tvst.arvojournals.org/article.aspx?articleid=2810840