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Stargardt's Connected

2 days ago

Join us on Saturday 26th September from 12:00pm to 1:30pm for a Zoom session exploring home technology and how you can adapt your home to better suit your needs when living with Stargardt’s disease. We will be joined by Robert McCann, Stargardt’s Connected Trustee and Equipment Centre Coordinator at Sheffield Royal Society for the Blind, who will share practical advice, personal experiences, and useful tips to help make everyday life at home easier and more accessible. There will also be lots of opportunity to share your home tech adaptations techniques and ideas with the group.

In the second part, we will have our usual breakout sessions where you’ll have the opportunity to speak to others in smaller groups, share your experiences and connect with others in the community.

Here is the link to register: us02web.zoom.us/meeting/register/-qRXHk2QQvSodoHA5NwQJQ

PD: a yellow poster announcing the next Community Zoom session on the 26th September at 12pm (BST - UK Time).

#StargardtsConnected #Stargardts #CommunityZoom #ZoomSession ...

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Stargardt's Connected

6 days ago

Join us on Monday 21st September from 5:30pm to 6:30pm (BST - UK time) for a session focused on helping you feel confident going back to school, starting college or university and speaking up about what you need when living with Stargardt’s disease.

We’ll explore ways to explain your needs, ask for support, and work with teachers to make changes that help you learn and feel included. We’ll also share ideas about classroom adaptations, useful strategies, and how you can feel more confident advocating for yourself at school, college or university. There will be an opportunity to ask questions, share experiences, and learn from others.

Here is the link to register: us02web.zoom.us/meeting/register/AmktHCgFQ0CJ9emta2K1Vg

PD1: a yellow poster announcing our next children and young people’s Zoom session on the 21st September at 5:30-6:30pm (BST - UK time).

#StargardtsConnected #Stargardts #ZoomSessions #SelfAdvocating ...

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Stargardt's Connected

2 weeks ago

Join us for our upcoming Zoom exercise sessions with Shreya Mehta, a qualified personal trainer who is also living with Stargardt’s. These beginner-friendly sessions are designed to help you move, build confidence, and stay active in a supportive and inclusive environment. Shreya will guide you through accessible exercises, with opportunities to progress and challenge yourself as you feel comfortable. Whether you’re new to exercise or looking to build a regular routine, these sessions are a great way to get started.

Anyone is welcome including children and family members so please do bring them along. Sessions will take place on Zoom giving you the flexibility to join from home and take part at a pace that works for you.

Here is the link to the first session on Saturday 12th September at 10am (BST - UK Time): us02web.zoom.us/meeting/register/SgvZuoYzSlSX_pWdNLdoCQ

Here is the list of dates for these upcoming sessions, each one will be for an hour and start at 10am (BST - UK Time).

12th September
3rd October
17th October
31st October
14th November
5th December

If you are interested in 1-1 online or in-person sessions with Shreya, please do reach out to her at [email protected] or through her instagram page MehtaFit Personal Training.

PD: a poster with photos of Shreya and black writing reading Fitness Sessions with Shreya via Zoom Saturday 12th September 10am BST (UK-Time).

#Stargardts #StargardtsConnected #ZoomFitness #FitnessSessions ...