Conference Registration
Our 2024 conference will take place on Saturday 23rd November from 10.00am - 4.30pm.
The venue is etc. venues, 8 Fenchurch Place, London EC3M 4PB.
There is no cost to attend. Light refreshments, tea and coffee will be served on arrival from 10.00am onwards.
Throughout the day, there will be a separate session of games and activities for children and young people between the ages of 6-17. We are unable to offer a creche facility for younger children.
Please see below for timetable, directions and registration. If you would like to attend please ensure that you complete the Registration Form.
10.00am: Arrivals
Light refreshments, tea and coffee will be served.
10.30am - 12.00pm: Drop-in sessions (for in-person attendees)
In-person attendees will be able to attend a range of different drop-in sessions throughout the morning:
- Stargardt's Connected: Meet some of the team and find out what we offer and how you can get more involved
- Exhibitors: Come and meet UK charities and businesses who offer support and services to people with Stargardt's disease
- Parent's session: For parents of children with Stargardt's disease
- Living well with Stargardt's: Experience sharing of hints and tips for navigating daily life with Stargardt's disease
- Technology session: Bring your device and learn how to get the most out of it
- Meet the Scientists: Come and take part in this interactive session and speak to scientists about their research into Stargardt's disease
10.00am - 4:30pm: Young person's session
A young person’s session will run throughout with games and activities for ages 6-17 years. Parents are asked to register children for this session. Please be aware spaces are limited.
12.00pm - 1.30pm: Lunch (will be provided)
1:30pm - 4:30pm: Plenary session (available in-person and online via Zoom)
- Welcome and Introductions
- Presentations from scientists and pharma companies about research into Stargardt's disease
- Panel session with people affected by Stargardt's disease
4:30pm: Finish
Please note: We will have sighted guides outside the underground, DLR and train stations. They will wear yellow Stargardt’s Connected t-shirts and can escort those needing assistance to the venue.
By underground: District or Circle Lines to Tower Hill Station. Tower Hill is approximately 5 minutes walk. From either Eastbound or Westbound platforms, follow the Way Out signs saying Fenchurch Street and Tower Gateway DLR. Go up the steps and into the station ticket area. Turn right out of the station and onto Coopers Row.
* Follow Coopers Row for 250 metres (you’ll see a large stone railway bridge ahead of you) and at the end of the road, just after the bridge, turn left onto Crutched Friars. Carry on down Crutched Friars to the back entrance of the venue at 43-44 Crutched Friars on the right-hand side of the street opposite the DoubleTree by Hilton London – Tower of London. This is the same address as for the Alzheimer’s Society.
By DLR: Tower Gateway Station is approximately 7 minutes walk. At the station exit, cross over the Minories and follow signs to Tower Hill underground station (100 metres away). Just before the underground station entrance, turn left down the steps. At the bottom of the steps, turn right, up a slope with steps at the end. At the top of the steps, turn right and walk towards the underground station exit (25 metres up on the right hand side). Follow the directions from * above.
By train: 8 Fenchurch Place is situated right next door to Fenchurch Street station. Exit the station via Exit 1 which can be found at the end of Platforms 1-4. When using Exit 1 simply turn right out of the station, the main entrance to etc.venues is through the large white arch. If you exit Fenchurch Street via Exits 2 & 3, you will need to turn right upon exiting the stations and onto Coopers Row*, from here follow the directions as outlined above for the exiting the Underground.
By bus: 8 Fenchurch Place is served by many bus routes including the 35, 47, 48 and 149.
- Wheelchair access: Yes
- Wheelchair parking: Yes
- Approach to building: Street / pavement
- Door control: Push/pull
- Internal corridor width: 1.5 metres
- Mobile induction loop: Yes
- Accessible WC: Yes
- Assistance dog friendly: Yes
Conference Registration form
Thank you to the sponsors of Stargardt’s Connected Conference 2024
(Headline Sponsor)
