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Stargardt's Connected

4 days ago

Beginning today, (11th to 13th September), our very own board member Toby Evans, who has Stargardt’s, will be cycling from Marble Arch (London) to the Arc de Triomphe (Paris) on the back of a tandem to raise money for Stargardt’s Connected.

The money Toby raises will go a long way to raising awareness, helping find a cure and supporting people diagnosed with Stargardt’s Disease. You’ll be able to follow Toby’s journey with live tracking and updates on www.brcc.bike during the ride.

Wishing you the absolute best of luck on your journey Toby!

You can find Toby’s JustGiving page here: www.justgiving.com/page/toby-evans-2025

PD: a photo of Toby on the back of a tandem bike with his cycling partner at the front.

#Stargardts #StargardtsConnected #Fundraising #Tandem ... See MoreSee Less

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Stargardt's Connected

6 days ago

Join us on Monday 15th September 7pm (BST) for our next Parent’s Zoom session.

This will be an informal session for parents of CYP with Stargardt’s to get together and share tips and experiences. We will also be joined by Sian Muggridge, Qualified Teacher of Visually Impaired Children, to help answer some of your education related questions.

Here is the link to register: us02web.zoom.us/meeting/register/_UgfvyJUQNmgYuT2MUNs2g

PD: a yellow poster announcing the Parent’s Zoom session at 7pm (BST) Monday 15th September.

#Stargardts #StargardtsConnected #ZoomSessions #ParentSupport ... See MoreSee Less

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Stargardt's Connected

1 week ago

Join us on Monday 15th September 5:30pm (BST) for our next Children and Young People’s Zoom session.

We will be joined by the fantastic Zakia, a wellbeing and mindfulness practitioner, to guide us through some mental health and wellbeing activities. Tilly and Ethan will also chat about their own journeys with mental health and share what helps them stay positive. You will also have the chance to talk about your experiences and ask questions throughout the session.

Here is the link to register: us02web.zoom.us/meeting/register/JqAbKRYxQv2t8rnbGnnalg

PD: a yellow poster announcing the next Children and Young People’s Zoom session at 5:30pm (BST) Monday 15th September.

#Stargardts #StargardtsConnected #ZoomSessions #MentalHealth ... See MoreSee Less

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