We are absolutely delighted to announce our Stargardt’s Star for August: the incredible Alex Miles.
Alex was diagnosed with Stargardt’s during the COVID pandemic after she and her family noticed her vision was changing. She started sitting closer and closer to her laptop while studying at home. Alex was just 15 years old and due to start Year 11 the Monday after her diagnosis.
It was a huge shock, but in true Alex style, she didn’t let it stop her. She completed her A-Levels with excellent grades, went on to university, and trained to become a primary school teacher. This helped Alex feel fulfilled, happy, and independent, completing teaching placements, enjoying contact sports as a new hobby, and finding a fantastic partner and relationship that brings her great joy.
Alex loves giving back to the community through her work with Stargardt’s Connected. Among other things, she supports children and young people and their families by leading tailored Zoom sessions on living with Stargardt’s, making a huge difference in people’s lives.
In the future, Alex hopes to complete her dissertation on sight loss in schools and the support, strategies, and adaptations that can be put in place for children and young people with sight loss.
Alex’s advice: “I have learned since being diagnosed with Stargardt’s that we are often more resilient then we give ourselves credit for, and you never know what you can achieve until you try it.”
PD: a lovely photo of Alex smiling wearing a white and brown framed glasses.
#StargardtsConnected #StargardtsStar #Community #Star
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