Research Update

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A huge thank you to our medical adviser Professor Michel Michaelides from Moorfields Eye Hospital and Institute of Ophthalmology, UCL who recently joined our Zoom session to give a Stargardt’s research update and hold a question and answer session.

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My sister and I have SD and earlier this year we found our our third generation cousin has also got SD. I believe this is very rare and there is one other family with these connections in SD in Canada. What does this mean? Is our SD somehow different?

It is unusual but not rare; partly given the fact that 1 in 20 to 1 in 50 people are carriers for a fault in the gene ABCA4