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Stargardt's Connected
4 hours ago
Stargardt's Connected

🌟We are excited to introduce unstoppable Utkarsh as this month’s Stargardt’s Star 🌟

Whilst living with Stargardt’s, Utkarsh also works in supply chain finance, reads between 50 and 100 books each year thanks to assistive technology and his passion for learning, and is a devoted husband and father to a two-year-old. Utkarsh is also the author of the science fiction novel The Gravity Shock Planet 2121, which earned a spot on Amazon’s book chart.

You can read this here: tinyurl.com/55vwbe8a

Utkarsh’s message to the community: “It’s not that easy. I’ve had to jump through multiple hoops and still face ongoing challenges. But this is a lifelong battle I’m willing to fight. I’m determined to bring greater awareness to Stargardt’s, not through pity, but through meaningful contribution. Disability doesn’t mean inability. And our challenges don’t define us- our drive to rise does”.

Utkarsh, your drive and determination is truly inspiring. 🌟

PD: a photo of Utkarsh in front of a red curtain at the Indian Authors Academy. Utkarsh is wearing a white t-shirt and is holding two books in front of him, the Travel India Word Search Puzzle book and Utkarsh’s book The Gravity Shock Planet 2121.

#StargardtsStar #StargardtsConnected #InspiringStories #SciFiAuthor #TheGravityShockPlanet2121 #Bookstagram #StargardtsCommunity #Stargardts
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🌟We are excited to introduce unstoppable Utkarsh as this month’s Stargardt’s Star 🌟 

Whilst living with Stargardt’s, Utkarsh also works in supply chain finance, reads between 50 and 100 books each year thanks to assistive technology and his passion for learning, and is a devoted husband and father to a two-year-old. Utkarsh is also the author of the science fiction novel The Gravity Shock Planet 2121, which earned a spot on Amazon’s book chart.

You can read this here: https://tinyurl.com/55vwbe8a

Utkarsh’s message to the community: “It’s not that easy. I’ve had to jump through multiple hoops and still face ongoing challenges. But this is a lifelong battle I’m willing to fight. I’m determined to bring greater awareness to Stargardt’s, not through pity, but through meaningful contribution. Disability doesn’t mean inability. And our challenges don’t define us- our drive to rise does”.

Utkarsh, your drive and determination is truly inspiring. 🌟

PD: a photo of Utkarsh in front of a red curtain at the Indian Authors Academy. Utkarsh is wearing a white t-shirt and is holding two books in front of him, the Travel India Word Search Puzzle book and Utkarsh’s book The Gravity Shock Planet 2121. 

#StargardtsStar #StargardtsConnected #InspiringStories #SciFiAuthor #TheGravityShockPlanet2121 #Bookstagram #StargardtsCommunity #Stargardts
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1 CommentsComment on Facebook

Stargardt's Connected
1 day ago
Stargardt's Connected

A huge congratulations to Shreya for achieving a personal best time (48 minutes, 46 seconds) at the AJ Bell Great Bristol Run on Sunday in support of Stargardt’s Connected.

Shreya, who has Stargardt’s, has worked incredibly hard preparing for the this race over the past few months and alongside her personal best, she has also managed to raise a whopping £1928 for Stargardt’s Connected. @mehtafit_pt you are an inspiration! Your efforts will go a long way to help us fund vital research and support for the Stargardt’s community.

If you’d like to make a donation to Shreya’s race fund, please visit her JustGiving page at the link below: www.justgiving.com/page/shreya-mehta-1?utm_medium=FR&utm_source=CL

PD: a photo of Shreya wearing a yellow Stargardt’s Connected t-shirt, black shorts and black hat. She is smiling holding up her race tag in one hand and her medal in the other.

#StargardtsConnected #StargardtsCommunity #Fundraising #AJBellGreatBristolRun #CharityRace #10K
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A huge congratulations to Shreya for achieving a personal best time (48 minutes, 46 seconds) at the AJ Bell Great Bristol Run on Sunday in support of Stargardt’s Connected. 

Shreya, who has Stargardt’s, has worked incredibly hard preparing for the this race over the past few months and alongside her personal best, she has also managed to raise a whopping £1928 for Stargardt’s Connected. @mehtafit_pt you are an inspiration! Your efforts will go a long way to help us fund vital research and support for the Stargardt’s community. 

If you’d like to make a donation to Shreya’s race fund, please visit her JustGiving page at the link below: https://www.justgiving.com/page/shreya-mehta-1?utm_medium=FR&utm_source=CL

PD: a photo of Shreya wearing a yellow Stargardt’s Connected t-shirt, black shorts and black hat. She is smiling holding up her race tag in one hand and her medal in the other. 

#StargardtsConnected #StargardtsCommunity #Fundraising #AJBellGreatBristolRun #CharityRace #10K
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  • likes love 9
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0 CommentsComment on Facebook

Stargardt's Connected
6 days ago
Stargardt's Connected

Join us for our next Community Zoom session on 31st May 12-1:30pm (GMT).

We are delighted to have Jonathan Vine, Senior Director of Clinical Operations at SpliceBio, provide an update on their Stargardt’s clinical trials with an opportunity for questions and answers after.

Here is the link to the registration:
us02web.zoom.us/meeting/register/N86MUBXtRtifMOTxUpucVw

PD: a poster with a yellow background and black writing announcing our upcoming Community Zoom session on the 31st May at 12pm (GMT).

#StargardtsConnected #Stargardts #CommunityZoomSession #Zoom #OnlineSessions #StargardtsTrials #ClinicalTrials #SpliceBio
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Join us for our next Community Zoom session on 31st May 12-1:30pm (GMT). 

We are delighted to have Jonathan Vine, Senior Director of Clinical Operations at SpliceBio, provide an update on their Stargardt’s clinical trials with an opportunity for questions and answers after.

Here is the link to the registration: 
https://us02web.zoom.us/meeting/register/N86MUBXtRtifMOTxUpucVw
 
PD: a poster with a yellow background and black writing announcing our upcoming Community Zoom session on the 31st May at 12pm (GMT). 
 
#StargardtsConnected #Stargardts #CommunityZoomSession #Zoom #OnlineSessions #StargardtsTrials #ClinicalTrials #SpliceBio
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  • likes 7
  • Shares: 3
  • Comments: 0

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