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Stargardt's Connected
5 days ago
Stargardt's Connected

We were delighted to have Dr. Alekseev, a Principal Investigator for the Belite Bio DRAGON II study at Duke University Hospital (Duke Eye Center) join our Community Zoom session on Saturday to share recent research updates on Stargardt’s Disease and providing an update on the DRAGON II study clinical trials.

You can now watch it too on our YouTube channel. Here is the link: www.youtube.com/watch?v=6itH4lDyyZY

For more information you can contact Belite Bio at clinicaltrials.gov. Here is the link: clinicaltrials.gov/study/NCT05428735

PD: a poster with a yellow background and black writing announcing that the Belite Bio Zoom recording is now available on YouTube.

#Stargardts #StargardtsConnected #Community #ClinicalTrials
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We were delighted to have Dr. Alekseev, a Principal Investigator for the Belite Bio DRAGON II study at Duke University Hospital (Duke Eye Center) join our Community Zoom session on Saturday to share recent research updates on Stargardt’s Disease and providing an update on the DRAGON II study clinical trials. 

You can now watch it too on our YouTube channel. Here is the link: https://www.youtube.com/watch?v=6itH4lDyyZY

For more information you can contact Belite Bio at clinicaltrials.gov. Here is the link: https://clinicaltrials.gov/study/NCT05428735

PD: a poster with a yellow background and black writing announcing that the Belite Bio Zoom recording is now available on YouTube. 

#Stargardts #StargardtsConnected #Community #ClinicalTrials
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  • likes love 13
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0 CommentsComment on Facebook

Stargardt's Connected
2 weeks ago
Stargardt's Connected

Bhavna met up with her local MP, Lewis Cocking MP last week to help raise awareness of Stargardt’s and Stargardt’s Connected.

Topics and discussions included:
- Ethan’s diagnosis journey and how the charity came about
- What Stargardt’s is and what Stargardt’s Connected does
- Impact of sight loss on the individual and the society
- Stargardt’s Research landscape
- 10 year NHS plan
- The new proposed SEND reforms

Lewis Cocking has offered to speak to the relevant ministers about the issues brought up and look forward to continuing these important conversations advocating our needs and helping to raise awareness.

PD: Lewis Cocking (left) and Bhavna (right) sitting together at a roundtable after their meeting with a blue Lewis Cocking banner in the background.

#StargardtsConnected #Stargardts #StargardtsResearch @lewiscockingmp
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Bhavna met up with her local MP, Lewis Cocking MP last week to help raise awareness of Stargardt’s and Stargardt’s Connected.

Topics and discussions  included: 
- Ethan’s  diagnosis journey and how the charity came about 
- What Stargardt’s is and what Stargardt’s Connected does
- Impact of sight loss on the individual and the society
- Stargardt’s Research landscape 
- 10 year NHS plan 
- The new proposed SEND reforms 

Lewis Cocking has offered to speak to the relevant ministers about the issues brought up and look forward to continuing these important conversations advocating our needs and helping to raise awareness. 

PD: Lewis Cocking (left) and Bhavna (right) sitting together at a roundtable after their meeting with a blue Lewis Cocking banner in the background. 

#StargardtsConnected #Stargardts #StargardtsResearch @lewiscockingmp
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  • Comments: 3

3 CommentsComment on Facebook

Stargardt's Connected
2 weeks ago
Stargardt's Connected

Our Calendar Competition is back by popular demand!

We’re now accepting photo submissions for our 2026 Charity Calendar Competition. This time the theme is Architecture🏛️.

Examples can be photos you may have taken of any iconic buildings, or interesting architecture you’ve come across.

Do get snapping this summer and we look forward to seeing your photo entries!

•Send us up to 3 photos on the theme of architecture
•Anyone with Stargardt’s can enter.
•The winning photos will feature in our 2026 calendar
•Submit enteries by Sunday 31st August 2025

Please submit your photos via our website: stargardtsconnected.org.uk/calendar-entries/
For terms and conditions visit our website.

Happy Snapping!

Calendars will be sold on our website from Autumn with all proceeds to go to Stargardt’s Connected. This money helps us to continue to provide vital support to those affected by Stargardt’s as well as help fund Stargardt’s research.

PD: a poster with the text 2026 Calendar Photo Competition at the top. There is a picutre of year’s calendar underneath with the competition details listed below.

#StargardtsConnected
#Stargardts
#CharityCalendar
#CharityCalendarCompetition
... See MoreSee Less

Our Calendar Competition is back by popular demand! 

We’re now accepting photo submissions for our 2026 Charity Calendar Competition. This time the theme is Architecture🏛️. 

Examples can be photos you may have taken of any iconic buildings, or interesting architecture you’ve  come across. 

Do get snapping this summer and we look forward to seeing your photo entries!

•Send us up to 3 photos on the theme of architecture
•Anyone with Stargardt’s can enter. 
•The winning photos will feature in our 2026 calendar
•Submit enteries by Sunday 31st August 2025

Please submit your photos via our website: https://stargardtsconnected.org.uk/calendar-entries/
For terms and conditions visit our website. 

Happy Snapping! 

Calendars will be sold on our website from Autumn with all proceeds to go to Stargardt’s Connected. This money helps us to continue to provide vital support to those affected by Stargardt’s as well as help fund Stargardt’s research.  

PD: a poster with the text 2026 Calendar Photo Competition at the top. There is a picutre of year’s calendar underneath with the competition details listed below. 

#StargardtsConnected
#Stargardts 
#CharityCalendar
#CharityCalendarCompetition
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  • Shares: 0
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