Skip to content
Stargardt's Connected Logo
DONATE
  • About
    • Our Stargardt’s Journey
    • FAQ
    • Genetic information
      • Diagnosis
      • Management
      • Genetics and Inheritance
      • Genetic Services and Testing
    • Team
    • Useful links
  • Community Register
  • Education
    • Toolkit
  • Support
    • Get in touch
    • Practical support
    • Emotional support
    • Covid-19
  • Research
    • Latest Research
    • Gene Therapy
    • Stem Cell Therapy
    • Drug Therapy
  • Nutrition
    • Recipes
    • Vitamin A and Stargardt’s Disease
  • Fundraising
    • Chelsea Flower Show
    • Bake Sale Toolkit
  • News
    • Events
    • Event News
    • Event Video Sessions
    • Stories
  • Contact
You are here: Home > Events
0 events found.
  • No events scheduled for 24 February, 2025. Jump to the next upcoming events.
  • No events scheduled for 24 February, 2025. Jump to the next upcoming events.

Events Search and Views Navigation

Event Views Navigation

  • List
  • Month
  • Day
Today
  • Previous Day
  • Next Day
  • Google Calendar
  • iCalendar
  • Outlook 365
  • Outlook Live
  • Export .ics file
  • Export Outlook .ics file

News from our Faceboook page

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons
Stargardt's Connected
12 hours ago
Stargardt's Connected

A huge congratulations to Shreya for achieving a personal best time (48 minutes, 46 seconds) at the AJ Bell Great Bristol Run on Sunday in support of Stargardt’s Connected.

Shreya, who has Stargardt’s, has worked incredibly hard preparing for the this race over the past few months and alongside her personal best, she has also managed to raise a whopping £1928 for Stargardt’s Connected. @mehtafit_pt you are an inspiration! Your efforts will go a long way to help us fund vital research and support for the Stargardt’s community.

If you’d like to make a donation to Shreya’s race fund, please visit her JustGiving page at the link below: www.justgiving.com/page/shreya-mehta-1?utm_medium=FR&utm_source=CL

PD: a photo of Shreya wearing a yellow Stargardt’s Connected t-shirt, black shorts and black hat. She is smiling holding up her race tag in one hand and her medal in the other.

#StargardtsConnected #StargardtsCommunity #Fundraising #AJBellGreatBristolRun #CharityRace #10K
... See MoreSee Less

A huge congratulations to Shreya for achieving a personal best time (48 minutes, 46 seconds) at the AJ Bell Great Bristol Run on Sunday in support of Stargardt’s Connected. 

Shreya, who has Stargardt’s, has worked incredibly hard preparing for the this race over the past few months and alongside her personal best, she has also managed to raise a whopping £1928 for Stargardt’s Connected. @mehtafit_pt you are an inspiration! Your efforts will go a long way to help us fund vital research and support for the Stargardt’s community. 

If you’d like to make a donation to Shreya’s race fund, please visit her JustGiving page at the link below: https://www.justgiving.com/page/shreya-mehta-1?utm_medium=FR&utm_source=CL

PD: a photo of Shreya wearing a yellow Stargardt’s Connected t-shirt, black shorts and black hat. She is smiling holding up her race tag in one hand and her medal in the other. 

#StargardtsConnected #StargardtsCommunity #Fundraising #AJBellGreatBristolRun #CharityRace #10K
View on Facebook
· Share
Share on Facebook Share on Twitter Share on Linked In Share by Email
View Comments
  • likes love 7
  • Shares: 1
  • Comments: 0

0 CommentsComment on Facebook

Stargardt's Connected
5 days ago
Stargardt's Connected

Join us for our next Community Zoom session on 31st May 12-1:30pm (GMT).

We are delighted to have Jonathan Vine, Senior Director of Clinical Operations at SpliceBio, provide an update on their Stargardt’s clinical trials with an opportunity for questions and answers after.

Here is the link to the registration:
us02web.zoom.us/meeting/register/N86MUBXtRtifMOTxUpucVw

PD: a poster with a yellow background and black writing announcing our upcoming Community Zoom session on the 31st May at 12pm (GMT).

#StargardtsConnected #Stargardts #CommunityZoomSession #Zoom #OnlineSessions #StargardtsTrials #ClinicalTrials #SpliceBio
... See MoreSee Less

Join us for our next Community Zoom session on 31st May 12-1:30pm (GMT). 

We are delighted to have Jonathan Vine, Senior Director of Clinical Operations at SpliceBio, provide an update on their Stargardt’s clinical trials with an opportunity for questions and answers after.

Here is the link to the registration: 
https://us02web.zoom.us/meeting/register/N86MUBXtRtifMOTxUpucVw
 
PD: a poster with a yellow background and black writing announcing our upcoming Community Zoom session on the 31st May at 12pm (GMT). 
 
#StargardtsConnected #Stargardts #CommunityZoomSession #Zoom #OnlineSessions #StargardtsTrials #ClinicalTrials #SpliceBio
View on Facebook
· Share
Share on Facebook Share on Twitter Share on Linked In Share by Email
View Comments
  • likes 7
  • Shares: 3
  • Comments: 0

0 CommentsComment on Facebook

Stargardt's Connected
6 days ago
Stargardt's Connected

A huge congratulations to Liv and her amazing friends who took on the Great Birmingham Half Marathon Run this Sunday in support of Stargardt’s Connected!

Liv, who has Stargardt’s herself, took on the challenge alongside an incredible group of friends showing such strength, determination, and teamwork every step of the way. We’re so proud of them all for raising awareness and vital funds for our community.

Together, they’ve already raised an incredible £3,600 so far for Stargardt’s Connected, helping us continue our work supporting people with Stargardt’s disease and their families.

There’s still time to show your support. If you’d like to donate, you can do so here: www.justgiving.com/page/imogen-kielstra-1734997415151?utm_medium=FR&utm_source=CL

Let’s keep the momentum going and celebrate this incredible achievement!

PD1: A photo of Team Stargardt including Liv wearing a yellow Stargardt’s Connected t-shirt and all her friends wearing white t-shirts holding her up. They are all laughing.

PD2: A photo of Team Stargardt including Liv wearing a yellow Stargardt’s Connected t-shirt and all her friends wearing white t-shirts all kneeling together with big smiles.

#StargardtsConnected #GreatBirminghamRun #FundraisingHeroes #TeamStargardts
... See MoreSee Less

A huge congratulations to Liv and her amazing friends who took on the Great Birmingham Half Marathon Run this Sunday in support of Stargardt’s Connected! 

Liv, who has Stargardt’s herself, took on the challenge alongside an incredible group of friends showing such strength, determination, and teamwork every step of the way. We’re so proud of them all for raising awareness and vital funds for our community.

Together, they’ve already raised an incredible £3,600 so far for Stargardt’s Connected, helping us continue our work supporting people with Stargardt’s disease and their families. 

There’s still time to show your support. If you’d like to donate, you can do so here: https://www.justgiving.com/page/imogen-kielstra-1734997415151?utm_medium=FR&utm_source=CL

Let’s keep the momentum going and celebrate this incredible achievement! 

PD1: A photo of Team Stargardt including Liv wearing a yellow Stargardt’s Connected t-shirt and all her friends wearing white t-shirts holding her up. They are all laughing. 

PD2: A photo of Team Stargardt including Liv wearing a yellow Stargardt’s Connected t-shirt and all her friends wearing white t-shirts all kneeling together with big smiles. 

#StargardtsConnected #GreatBirminghamRun #FundraisingHeroes #TeamStargardtsImage attachment
View on Facebook
· Share
Share on Facebook Share on Twitter Share on Linked In Share by Email
View Comments
  • likes love 10
  • Shares: 0
  • Comments: 1

1 CommentsComment on Facebook

Load more

Sign up to our mailing list

Join us on social media

With thanks to

lottery 600
powell 400

Proud members of

genetic alliance UK logo

Legal

  • Accessibility
  • Terms & Conditions
  • Privacy
  • Cookie Policy
  • GDPR

© 2025 Stargardt's Connected (Registered Charity Number: 1183570) • Website by Perfectly Digital Ltd

×