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Stargardt's Connected
1 day ago
Stargardt's Connected

As we celebrate #VolunteersWeek, we want to take a moment to send a huge thank you to all our incredible volunteers who are so invaluable and play a crucial part in the success of our events.

Whether it is supporting behind the scenes, to helping run activities- your time, energy, and passion is very much appreciated.

Thank you for dedicating your time and being such a vital part of our community. 💛

The collage of pictures are of just some of our wonderful volunteers from our Stargardt’s Connected 2024 Conference.

PD: a collage of photos of some of our wonderful volunteers from the Stargardt’s Connected 2024 Conference.

#ThankYouVolunteers #StargardtsConnected #VolunteersWeek2025 #StargardtsConference
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As we celebrate #VolunteersWeek, we want to take a moment to send a huge thank you to all our incredible volunteers who are so invaluable and play a crucial part in the success of our events. 

Whether it is supporting behind the scenes,  to helping run activities- your time, energy, and passion is very much appreciated. 

Thank you for dedicating your time and being such a vital part of our community. 💛

The collage of pictures are of just some of our wonderful volunteers from our Stargardt’s Connected 2024 Conference.  

PD: a collage of photos of some of our wonderful volunteers from the Stargardt’s Connected 2024 Conference. 

#ThankYouVolunteers #StargardtsConnected #VolunteersWeek2025 #StargardtsConference
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Stargardt's Connected
3 days ago
Stargardt's Connected

We were delighted to have Jonathan Vine, Senior Director of Clinical Operations at SpliceBio, provide an update on their Stargardt’s clinical trials at our Community Zoom on Saturday.

You can now watch it too on our YouTube channel www.youtube.com/watch?v=kjxKvPLqA4A

For more information, you can contact SpliceBio at [email protected].

PD: a poster with a yellow background and black writing announcing that the SpliceBio Zoom recording is now available on YouTube.

#Stargardts #StargardtsConnected #ClinicalTrials #ZoomSessions
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We were delighted to have Jonathan Vine, Senior Director of Clinical Operations at SpliceBio, provide an update on their Stargardt’s clinical trials at our Community Zoom on Saturday. 

You can now watch it too on our YouTube channel https://www.youtube.com/watch?v=kjxKvPLqA4A

For more information, you can contact SpliceBio at clinicialtrials@splice.bio.

PD: a poster with a yellow background and black writing announcing that the SpliceBio Zoom recording is now available on YouTube. 

#Stargardts #StargardtsConnected #ClinicalTrials #ZoomSessions
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Stargardt's Connected
4 days ago
Stargardt's Connected

We are so delighted to share June’s amazing Stargardt’s Star, Shreya Mehta. 🌟

Shreya was diagnosed with Stargardt’s when she was 21 during her second year at university. Finding it overwhelming at first, Shreya managed to moved forward with positivity thanks to the support from her friends, family, university and consultant.

Now 25 and working as an Aircraft Performance Engineer at Vertical Aerospace in Bristol developing electric aircraft, Shreya is helping to shape the future of green aviation with pride, never allow Stargardt’s to hold her back.

Shreya advice: “If there’s one thing I’ve learned, it’s that you’re still capable of achieving anything, you just need to approach it with resilience and adapt in your own way. There’s always a way forward.”

Also, passionate about fitness, Shreya has a growing personal training business helping people become stronger, healthier and enjoying moving their bodies. If you’d like to follow Shreya’s fitness journey find her at @mehtafit_pt.

Shreya also recently completed a 10K for Stargardt’s Connected and raised a whopping £1,948.

Wow Shreya, you really are inspirational!

PD: a photo of Shreya on the left wearing a purple dress with her arm around her mum, on the right, wearing a lovely blue dress and a big smile.

#StargardtsConnected #StargardtsStar #Proud #Insipirational #VerticalAerospace
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We are so delighted to share June’s amazing Stargardt’s Star, Shreya Mehta. 🌟

Shreya was diagnosed with Stargardt’s when she was 21 during her second year at university. Finding it overwhelming at first, Shreya managed to moved forward with positivity thanks to the support from her friends, family, university and consultant. 

Now 25 and working as an Aircraft Performance Engineer at Vertical Aerospace in Bristol developing electric aircraft, Shreya is helping to shape the future of green aviation with pride, never allow Stargardt’s to hold her back. 

Shreya advice: “If there’s one thing I’ve learned, it’s that you’re still capable of achieving anything, you just need to approach it with resilience and adapt in your own way. There’s always a way forward.”

Also, passionate about fitness, Shreya has a growing personal training business helping people become stronger, healthier and enjoying moving their bodies. If you’d like to follow Shreya’s fitness journey find her at @mehtafit_pt. 

Shreya also recently completed a 10K for Stargardt’s Connected and raised a whopping £1,948. 

Wow Shreya, you really are inspirational! 

PD: a photo of Shreya on the left wearing a purple dress with her arm around her mum, on the right, wearing a lovely blue dress and a big smile. 

#StargardtsConnected #StargardtsStar #Proud #Insipirational #VerticalAerospace
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  • likes love 16
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  • Comments: 0

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