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Stargardt's Connected
9 hours ago
Stargardt's Connected

Join Stargardt’s Connected and VICTA for an epic day of adventure at Lee Valley White Water Centre on Saturday 13th September 2025.

Start the day with Water Wipeout, a fun inflatable obstacle course on the lake, before taking on white water rafting on the Olympic Legacy Loop. Learn rafting skills, ride the rapids, and build your confidence along the way.

This activity day is for 8 to 17 year olds with a vision impairment and their immediate family.

It costs just £5 per participating child (8 and over). The closing date to apply is Friday 15 August.

This is a brilliant opportunity to meet other young people with a vision impairment, grow in confidence, and try something new. It’s also a great opportunity for parents to get together and network and share experiences.

Parents and guardians must stay on site for the day.

🌊 Apply now and rise to the challenge!

Here is the link to apply: www.victa.org.uk/victa-calendar/stargardts-white-water/

For any questions, email [email protected].

PD: A collage of photos of people participating in different fun-filled water adventures with a collection of organiser logos in the top left.

#StargardtsConnected #VICTA #WhiteWaterRafting #VisionImpairment
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Join Stargardt’s Connected and VICTA for an epic day of adventure at Lee Valley White Water Centre on Saturday 13th September 2025. 

Start the day with Water Wipeout, a fun inflatable obstacle course on the lake, before taking on white water rafting on the Olympic Legacy Loop. Learn rafting skills, ride the rapids, and build your confidence along the way.

This activity day is for 8 to 17 year olds with a vision impairment and their immediate family.

It costs just £5 per participating child (8 and over). The closing date to apply is Friday 15 August.

This is a brilliant opportunity to meet other young people with a vision impairment, grow in confidence, and try something new. It’s also a great opportunity for parents to get together and network and share experiences. 

Parents and guardians must stay on site for the day.

🌊 Apply now and rise to the challenge! 

Here is the link to apply:  https://www.victa.org.uk/victa-calendar/stargardts-white-water/

For any questions, email activities@victa.org.uk.

PD: A collage of photos of people participating in different fun-filled water adventures with a collection of organiser logos in the top left. 

#StargardtsConnected #VICTA #WhiteWaterRafting #VisionImpairment
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  • likes love 6
  • Shares: 1
  • Comments: 1

1 CommentsComment on Facebook

Stargardt's Connected
4 days ago
Stargardt's Connected

Today we’re celebrating International Sunglasses Day 🕶️

Snap a selfie in your favourite sunglasses
Tag us @stargardtsconnected
Use the hashtag #ShadesForStargardts

Did you know that research has shown that UV light can speed up the progression of Stargardt’s which is why it is recommended for people with Stargardt’s that they wear sunglasses all year round even on an overcast day.

People with Stargardt’s can also be photophobic which means they are sensitive to light therefore they have to wear sunglasses to protect them from light sensitivity.

So, let’s shine a light on eye health and celebrate our favourite shades.

Together, we can spread awareness and help others see the importance of eye protection 💫

PD: a yellow poster reading Happy International Sunglasses day. Around the writing is different coloured sunglasses.

#StargardtsConnected
#ShadesForStargardts #InternationalSunglassesDay #StargardtsSupport
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Today we’re celebrating International Sunglasses Day 🕶️

Snap a selfie in your favourite sunglasses
Tag us @stargardtsconnected
Use the hashtag #ShadesForStargardts

Did you know that research has shown that UV light can speed up the progression of Stargardt’s which is why it is recommended for people with Stargardt’s that they wear sunglasses all year round even on an overcast day. 

People with Stargardt’s can also be photophobic which means they are sensitive to light therefore they have to wear sunglasses to protect them from light sensitivity. 

So, let’s shine a light on eye health and celebrate our favourite shades. 

Together, we can spread awareness and help others see the importance of eye protection 💫

PD: a yellow poster reading Happy International Sunglasses day. Around the writing is different coloured sunglasses. 

#StargardtsConnected 
#ShadesForStargardts #InternationalSunglassesDay #StargardtsSupport
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  • likes 5
  • Shares: 2
  • Comments: 0

0 CommentsComment on Facebook

Stargardt's Connected
1 week ago
Stargardt's Connected

Bhavna was invited to present at the UK Eye Genetic Group (UK-EGG) annual conference at the University of Oxford last week. There she was asked to present on the Stargardt’s Community Register and Stargardt’s Connected.

It was an excellent day and really inspiring as well as exciting to hear about groundbreaking eye research from world leading experts in the field.

It was also good to be able to have the opportunity to raise awareness of some of the work that Stargardt’s Connected does to Medical professionals. Stargardt’s Connected is proud to be a member of UK-EGG.

PD1: Bhavna is stood next to Professor Sam De Silva (left) and Professor Susie Downes (to her right)

PD2: Bhavna is standing with Professor Samantha De Silva and Dr Nancy Aychoua

PD3: A photo of all the charity logos for those presenting at the conference including @retina_uk @fightforsightuk @macularsociety

#StargardtsConnected
#UniversityOfOxford #StAnnesCollege #OphthalmologyConference
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Bhavna was invited to present at the  UK Eye Genetic Group (UK-EGG) annual conference at the University of Oxford last week. There she was asked to present on the Stargardt’s Community Register and Stargardt’s Connected.

It was an excellent day and really inspiring as well as exciting to hear about groundbreaking eye research from world leading experts in the field. 

It was also good to be able to have the opportunity to raise awareness of some of the work that Stargardt’s Connected does to Medical professionals. Stargardt’s Connected is proud to be a member of UK-EGG. 

PD1: Bhavna is stood next to Professor Sam De Silva (left) and Professor Susie Downes (to her right)

PD2: Bhavna is standing with Professor Samantha De Silva and Dr Nancy Aychoua 

PD3: A photo of all the charity logos for those presenting at the conference  including @retina_uk @fightforsightuk @macularsociety 

#StargardtsConnected 
#UniversityOfOxford #StAnnesCollege #OphthalmologyConferenceImage attachmentImage attachment
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  • likes love 19
  • Shares: 1
  • Comments: 0

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