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Stargardt's Connected
12 hours ago
Stargardt's Connected

We are so excited to share July’s Stargardt’s Star with you all, Paul Appleyard! 🌟

Diagnosed with Stargardt’s at just 11 years old, Paul faced many of the common struggles experienced by young people with vision loss, at a time when technology and support were limited. But with determination, great friends, and a positive mindset, he went on to achieve 9 O-levels, 3 A-levels, and a postgrad diploma in Personnel & Development.

He started his career in banking through a supported scheme, eventually rising to become an Equality & Diversity Manager, and later, Assistant Director at Scope, the very charity that once supported him.

But of course, Paul didn’t stop there. After moving abroad with his family, Paul pursued golf competitively, and became a 3x Blind Golf World Champion, holding his title for 4 years! 🏌️‍♂️

Whilst overseas, Paul also ran a coaching business called Don’t Wait For Luck, empowering others through motivational speaking with a strong message of creating your own reality through proactive action.

Paul is also one of our wonderful volunteers and Stargardt’s Advocate and he is responsible for connecting people on the Community Register.

Paul’s advice: ‘Be tenacious, never give in. Be different and celebrate that difference. Be proud and don’t let others tell you what you can or can’t do. Be prepared to have knock backs, but get back up and do your thing.”

Paul, your accomplishments, can-do attitude and tenacity is truly admirable. 🌟

PD: a photo of Paul wearing sunglasses, a blue jacket and jeans standing on a bridge overlooking the water at Lake Louise.

#StargardtsConnected
#StargardtsStar #StargardtsAwareness #BlindGolfChampion
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We are so excited to share July’s Stargardt’s Star with you all, Paul Appleyard! 🌟

Diagnosed with Stargardt’s at just 11 years old, Paul faced many of the common struggles experienced by young people with vision loss, at a time when technology and support were limited. But with determination, great friends, and a positive mindset, he went on to achieve 9 O-levels, 3 A-levels, and a postgrad diploma in Personnel & Development.

He started his career in banking through a supported scheme, eventually rising to become an Equality & Diversity Manager, and later, Assistant Director at Scope, the very charity that once supported him.

But of course, Paul didn’t stop there. After moving abroad with his family, Paul pursued golf competitively, and became a 3x Blind Golf World Champion, holding his title for 4 years! 🏌️‍♂️

Whilst overseas, Paul also ran a coaching business called Don’t Wait For Luck, empowering others through motivational speaking with a strong message of creating your own reality through proactive action.

Paul is also one of our wonderful volunteers and Stargardt’s Advocate and he is responsible for connecting people on the Community Register. 

Paul’s advice: ‘Be tenacious, never give in. Be different and celebrate that difference. Be proud and don’t let others tell you what you can or can’t do. Be prepared to have knock backs, but get back up and do your thing.”

Paul, your accomplishments, can-do attitude and tenacity is truly admirable. 🌟

PD: a photo of Paul wearing sunglasses, a blue jacket and jeans standing on a bridge overlooking the water at Lake Louise.

#StargardtsConnected
#StargardtsStar #StargardtsAwareness #BlindGolfChampion
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  • likes 11
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  • Comments: 2

2 CommentsComment on Facebook

Stargardt's Connected
2 days ago
Stargardt's Connected

Join Stargardt’s Connected and VICTA for an epic day of adventure at Lee Valley White Water Centre on Saturday 13th September 2025.

Start the day with Water Wipeout, a fun inflatable obstacle course on the lake, before taking on white water rafting on the Olympic Legacy Loop. Learn rafting skills, ride the rapids, and build your confidence along the way.

This activity day is for 8 to 17 year olds with a vision impairment and their immediate family.

It costs just £5 per participating child (8 and over). The closing date to apply is Friday 15 August.

This is a brilliant opportunity to meet other young people with a vision impairment, grow in confidence, and try something new. It’s also a great opportunity for parents to get together and network and share experiences.

Parents and guardians must stay on site for the day.

🌊 Apply now and rise to the challenge!

Here is the link to apply: www.victa.org.uk/victa-calendar/stargardts-white-water/

For any questions, email [email protected].

PD: A collage of photos of people participating in different fun-filled water adventures with a collection of organiser logos in the top left.

#StargardtsConnected #VICTA #WhiteWaterRafting #VisionImpairment
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Join Stargardt’s Connected and VICTA for an epic day of adventure at Lee Valley White Water Centre on Saturday 13th September 2025. 

Start the day with Water Wipeout, a fun inflatable obstacle course on the lake, before taking on white water rafting on the Olympic Legacy Loop. Learn rafting skills, ride the rapids, and build your confidence along the way.

This activity day is for 8 to 17 year olds with a vision impairment and their immediate family.

It costs just £5 per participating child (8 and over). The closing date to apply is Friday 15 August.

This is a brilliant opportunity to meet other young people with a vision impairment, grow in confidence, and try something new. It’s also a great opportunity for parents to get together and network and share experiences. 

Parents and guardians must stay on site for the day.

🌊 Apply now and rise to the challenge! 

Here is the link to apply:  https://www.victa.org.uk/victa-calendar/stargardts-white-water/

For any questions, email activities@victa.org.uk.

PD: A collage of photos of people participating in different fun-filled water adventures with a collection of organiser logos in the top left. 

#StargardtsConnected #VICTA #WhiteWaterRafting #VisionImpairment
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  • likes love 9
  • Shares: 1
  • Comments: 1

1 CommentsComment on Facebook

Stargardt's Connected
6 days ago
Stargardt's Connected

Today we’re celebrating International Sunglasses Day 🕶️

Snap a selfie in your favourite sunglasses
Tag us @stargardtsconnected
Use the hashtag #ShadesForStargardts

Did you know that research has shown that UV light can speed up the progression of Stargardt’s which is why it is recommended for people with Stargardt’s that they wear sunglasses all year round even on an overcast day.

People with Stargardt’s can also be photophobic which means they are sensitive to light therefore they have to wear sunglasses to protect them from light sensitivity.

So, let’s shine a light on eye health and celebrate our favourite shades.

Together, we can spread awareness and help others see the importance of eye protection 💫

PD: a yellow poster reading Happy International Sunglasses day. Around the writing is different coloured sunglasses.

#StargardtsConnected
#ShadesForStargardts #InternationalSunglassesDay #StargardtsSupport
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Today we’re celebrating International Sunglasses Day 🕶️

Snap a selfie in your favourite sunglasses
Tag us @stargardtsconnected
Use the hashtag #ShadesForStargardts

Did you know that research has shown that UV light can speed up the progression of Stargardt’s which is why it is recommended for people with Stargardt’s that they wear sunglasses all year round even on an overcast day. 

People with Stargardt’s can also be photophobic which means they are sensitive to light therefore they have to wear sunglasses to protect them from light sensitivity. 

So, let’s shine a light on eye health and celebrate our favourite shades. 

Together, we can spread awareness and help others see the importance of eye protection 💫

PD: a yellow poster reading Happy International Sunglasses day. Around the writing is different coloured sunglasses. 

#StargardtsConnected 
#ShadesForStargardts #InternationalSunglassesDay #StargardtsSupport
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  • likes 5
  • Shares: 2
  • Comments: 0

0 CommentsComment on Facebook

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