Skip to content

Our fundraising calendar is now available. Get your copy here.

Stargardt's Connected Logo
DONATE
  • About
    • Our Stargardt’s Journey
    • FAQ
    • Genetic information
      • Diagnosis
      • Management
      • Genetics and Inheritance
      • Genetic Services and Testing
    • Team
    • Useful links
  • Community Register
  • Education
    • Toolkit
  • Support
    • Get in touch
    • Practical support
    • Emotional support
    • Covid-19
  • Research
    • Latest Research
    • Gene Therapy
    • Stem Cell Therapy
    • Drug Therapy
  • Nutrition
    • Recipes
    • Vitamin A and Stargardt’s Disease
  • Fundraising
    • Shop
    • Chelsea Flower Show
    • Bake Sale Toolkit
  • News
    • Events
    • Event News
    • Event Video Sessions
    • Stories
  • Contact
You are here: Home > Events
0 events found.
Notice
No events scheduled for 19 October, 2025. Jump to the next upcoming events.
Notice
No events scheduled for 19 October, 2025. Jump to the next upcoming events.

Events Search and Views Navigation

Event Views Navigation

  • List
  • Month
  • Day
Today
  • Previous Day
  • Next Day
  • Google Calendar
  • iCalendar
  • Outlook 365
  • Outlook Live
  • Export .ics file
  • Export Outlook .ics file

News from our Faceboook page

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons
Stargardt's Connected
4 hours ago
Stargardt's Connected

Join us on Monday 3rd November 5:30pm (GMT) for our next Children and Young People’s Zoom session.

Get ready for some autumn-themed fun! We’ll play games, enjoy a cosy story activity, and have time to share our experiences together.

Here is the link to register: us02web.zoom.us/meeting/register/30gU3-VNQIKqlqgxbfG0Uw

PD: a yellow poster announcing the next Children and Young People’s Zoom session at 5:30pm (GMT) Monday 3rd November.

#Stargardts #StargardtsConnected #ZoomSessions #AutumnFun
... See MoreSee Less

Join us on Monday 3rd November 5:30pm (GMT) for our next Children and Young People’s Zoom session. 

Get ready for some autumn-themed fun! We’ll play games, enjoy a cosy story activity, and have time to share our experiences together. 

Here is the link to register: https://us02web.zoom.us/meeting/register/30gU3-VNQIKqlqgxbfG0Uw

PD: a yellow poster announcing the next Children and Young People’s Zoom session at 5:30pm (GMT) Monday 3rd November. 

#Stargardts #StargardtsConnected #ZoomSessions #AutumnFun
View on Facebook
· Share
Share on Facebook Share on Twitter Share on Linked In Share by Email
View Comments
  • likes 0
  • Shares: 3
  • Comments: 0

0 CommentsComment on Facebook

Stargardt's Connected
5 days ago
Stargardt's Connected

On Saturday 15th November from 14:00-17:30 GMT we will be holding a Virtual Information Day which has been very kindly sponsored by AAVantgarde Bio and Alkeus Pharmaceuticals.

We will have speakers from:

•AAVantgarde Bio
•Alkeus Pharmaceuticals
•YouTuber Sam Seavey @theblindlifesam from The Blind Life talking about the latest assistive technology.
•A “Living with Stargardt’s” panel session with community members speaking on topics of education, employment and being a parent with Stargardt’s.
•Breakout sessions where
there will be the chance to chat informally in small groups and sharing tips and in small groups, with a dedicated Parent/Carer session with Sian QTVI available for those education related questions

Don’t miss this informative session and make sure you register for the event by clicking the button below.

We look forward to you joining us!

Here is the link to register: us02web.zoom.us/meeting/register/MeABUY-aTHW90Qg8-0ydMg

PD: A poster with black text announcing our virtual Information Day on the 15th November 2-5:30pm GMT. Logos of the event sponsors are displayed at the bottom of the poster.

#StargardtsConnected #InformationDay #ZoomSession #CommunityZoomSessions #Stargardts #StargardtsDisease #StargardtsSupport #StargardtsCommunity
... See MoreSee Less

On Saturday 15th November from 14:00-17:30 GMT we will be holding a Virtual Information Day which has been very kindly sponsored by AAVantgarde Bio and Alkeus Pharmaceuticals.
 
We will have speakers from: 

•AAVantgarde Bio
•Alkeus Pharmaceuticals 
•YouTuber Sam Seavey @theblindlifesam from The Blind Life talking about the latest assistive technology.
•A “Living with Stargardt’s” panel session with community members speaking on topics of education, employment and being a parent with Stargardt’s. 
•Breakout sessions where 
there will be the chance to chat informally in small groups  and sharing tips and in small groups, with a dedicated Parent/Carer session with Sian QTVI available for those education related questions

Don’t miss this informative session and make sure you register for the event by clicking the button below. 

We look forward to you joining us!

Here is the link to register: https://us02web.zoom.us/meeting/register/MeABUY-aTHW90Qg8-0ydMg

PD: A poster with black text announcing our virtual Information Day on the 15th November 2-5:30pm GMT. Logos of the event sponsors are displayed at the bottom of the poster. 

#StargardtsConnected #InformationDay #ZoomSession #CommunityZoomSessions #Stargardts #StargardtsDisease #StargardtsSupport #StargardtsCommunity
View on Facebook
· Share
Share on Facebook Share on Twitter Share on Linked In Share by Email
View Comments
  • likes 6
  • Shares: 5
  • Comments: 1

1 CommentsComment on Facebook

Stargardt's Connected
2 weeks ago
Stargardt's Connected

We are really excited to share that one our fantastic trustees, Marina, is doing a fundraiser on behalf of Stargardt’s Connected.

Marina herself lives with Stargardt’s but has never let that keep her away from her passion of open water swimming, exploring open waters from rivers to lakes and even seas. Marina will be taking on a three-day expedition in the south of Bahia, Brazil: swimming 2-3km in a river, 5km in the sea and 2km from the mangrove to the ocean using kayaks for navigation.

We’re so proud, Marina and wishing you the best of luck on your adventure!

Click here for Marina’s JustGiving page: www.justgiving.com/page/marina-leite-2025

PD1: a photo of Marina standing by a beautiful lake in her wet suit after an open water swim.

#StargardtsConnected #Fundraiser #CharityTrustee #OpenWaterSwimming #Stargardts
... See MoreSee Less

We are really excited to share that one our fantastic trustees, Marina, is doing a fundraiser on behalf of Stargardt’s Connected. 

Marina herself lives with Stargardt’s but has never let that keep her away from her passion of open water swimming, exploring open waters from rivers to lakes and even seas. Marina will be taking on a three-day expedition in the south of Bahia, Brazil: swimming 2-3km in a river, 5km in the sea and 2km from the mangrove to the ocean using kayaks for navigation. 

We’re so proud, Marina and wishing you the best of luck on your adventure! 

Click here for Marina’s JustGiving page: https://www.justgiving.com/page/marina-leite-2025

PD1: a photo of Marina standing by a beautiful lake in her wet suit after an open water swim. 

#StargardtsConnected #Fundraiser #CharityTrustee #OpenWaterSwimming #Stargardts
View on Facebook
· Share
Share on Facebook Share on Twitter Share on Linked In Share by Email
View Comments
  • likes love 10
  • Shares: 0
  • Comments: 0

0 CommentsComment on Facebook

Load more

Sign up to our mailing list

Join us on social media

With thanks to

lottery 600
powell 400

Proud members of

genetic alliance UK logo

Legal

  • Accessibility
  • Terms & Conditions
  • Privacy
  • Cookie Policy
  • GDPR

© 2025 Stargardt's Connected (Registered Charity Number: 1183570) • Website by Perfectly Digital Ltd

×