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8 Fenchurch Place
London, EC3M 4PB United Kingdom
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November 2024

Sat 23
23 November, 2024 @ 10:00 am - 4:30 pm GMT

Stargardt’s Connected Conference 2024

etc. venues 8 Fenchurch Place, London, United Kingdom
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Stargardt's Connected
9 hours ago
Stargardt's Connected

Bhavna was invited to present at the UK Eye Genetic Group (UK-EGG) annual conference at the University of Oxford last week. There she was asked to present on the Stargardt’s Community Register and Stargardt’s Connected.

It was an excellent day and really inspiring as well as exciting to hear about groundbreaking eye research from world leading experts in the field.

It was also good to be able to have the opportunity to raise awareness of some of the work that Stargardt’s Connected does to Medical professionals. Stargardt’s Connected is proud to be a member of UK-EGG.

PD1: Bhavna is stood next to Professor Sam De Silva (left) and Professor Susie Downes (to her right)

PD2: Bhavna is standing with Professor Samantha De Silva and Dr Nancy Aychoua

PD3: A photo of all the charity logos for those presenting at the conference including @retina_uk @fightforsightuk @macularsociety

#StargardtsConnected
#UniversityOfOxford #StAnnesCollege #OphthalmologyConference
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Bhavna was invited to present at the  UK Eye Genetic Group (UK-EGG) annual conference at the University of Oxford last week. There she was asked to present on the Stargardt’s Community Register and Stargardt’s Connected.

It was an excellent day and really inspiring as well as exciting to hear about groundbreaking eye research from world leading experts in the field. 

It was also good to be able to have the opportunity to raise awareness of some of the work that Stargardt’s Connected does to Medical professionals. Stargardt’s Connected is proud to be a member of UK-EGG. 

PD1: Bhavna is stood next to Professor Sam De Silva (left) and Professor Susie Downes (to her right)

PD2: Bhavna is standing with Professor Samantha De Silva and Dr Nancy Aychoua 

PD3: A photo of all the charity logos for those presenting at the conference  including @retina_uk @fightforsightuk @macularsociety 

#StargardtsConnected 
#UniversityOfOxford #StAnnesCollege #OphthalmologyConferenceImage attachmentImage attachment
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Stargardt's Connected
3 days ago
Stargardt's Connected

Join us for a day of fun, friendship, and fresh air at our annual Picnic in the Park in Hyde Park! We’re bringing people together from all over the country for a relaxed, joy-filled afternoon, pack your picnic blanket, bring your snacks and enjoy the great company. We can’t wait to see you there!

Where: Parade Ground, Hyde Park, London, W2, 2UH
When: Sunday 10th August
Time: 12-4pm (BST)
Nearest Tube: Marble Arch 5 minutes walk to the park

There will be sighted guides at Marble Arch Station and our volunteers in bright yellow charity T-Shirts to help guide if needed.

Let us know if you are attending by emailing [email protected].

PD: a poster announcing the next annual Picnic in the Park on the 10th August, 12:00-16:00 (BST). At the top of the poster is a photo from last year’s picnic with lots of people smiling in the sun.

#StargardtsConnected #PicnicInThePark #HydePark #Community #Stargardts #CommunityOutings #Networking
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Join us for a day of fun, friendship, and fresh air at our annual Picnic in the Park in Hyde Park! We’re bringing people together from all over the country for a relaxed, joy-filled afternoon, pack your picnic blanket, bring your snacks and enjoy the great company. We can’t wait to see you there!

Where: Parade Ground, Hyde Park, London, W2, 2UH
When: Sunday 10th August
Time: 12-4pm (BST)
Nearest Tube: Marble Arch 5 minutes walk to the park

There will be sighted guides at Marble Arch Station and our volunteers in bright yellow charity T-Shirts to help guide if needed.

Let us know if you are attending by emailing events@stargardtsconnected.org.uk. 

PD: a poster announcing the next annual Picnic in the Park on the 10th August, 12:00-16:00 (BST). At the top of the poster is a photo from last year’s picnic with lots of people smiling in the sun. 

#StargardtsConnected #PicnicInThePark #HydePark #Community #Stargardts #CommunityOutings #Networking
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Stargardt's Connected
4 days ago
Stargardt's Connected

Come and join us for our next Community Zoom session 19th July 17:00-18:30 (BST - UK time).

We are delighted to have Dr. Alekseev, a Principal Investigator for the Belite Bio DRAGON II study at Duke University Hospital (Duke Eye Center USA) joining this session to share recent research updates on Stargardt’s disease and providing an update on the DRAGON II Study clinical trials. Dr. Aleeksev’s clinical focus is on inherited retinal degenerations, including conditions like retinitis pigmentosa, Stargardt disease, macular pattern dystrophies, syndromic retinal degenerations, and mimickers like autoimmune and iatrogenic retinopathies. scholars.duke.edu/person/oleg.alekseev

In the second part, we will have our usual breakout sessions where you’ll have the opportunity to speak to others in smaller groups and share your experiences.

Here is the link:
us02web.zoom.us/meeting/register/_Tcxt2ydQ3uqDrNSqHT9Kg

PD: a poster with a yellow background and black writing announcing our upcoming Community Zoom session on Saturday 19th July at 17:00 BST.

#StargardtsConnected #Stargardts #BeliteBio #CommunityZoomSession #ClinicalTrials
... See MoreSee Less

Come and join us for our next Community Zoom session 19th July 17:00-18:30 (BST - UK time). 

We are delighted to have Dr. Alekseev, a Principal Investigator for the Belite Bio DRAGON II study at Duke University Hospital (Duke Eye Center USA) joining this session to share recent research updates on Stargardt’s disease and providing an update on the DRAGON II Study clinical trials. Dr. Aleeksev’s  clinical focus is on inherited retinal degenerations, including conditions like retinitis pigmentosa, Stargardt disease, macular pattern dystrophies, syndromic retinal degenerations, and mimickers like autoimmune and iatrogenic retinopathies. https://scholars.duke.edu/person/oleg.alekseev

In the second part, we will have our usual breakout sessions where you’ll have the opportunity to speak to others in smaller groups and share your experiences.

Here is the link: 
https://us02web.zoom.us/meeting/register/_Tcxt2ydQ3uqDrNSqHT9Kg

PD: a poster with a yellow background and black writing announcing our upcoming Community Zoom session on Saturday 19th July at 17:00 BST. 

#StargardtsConnected #Stargardts #BeliteBio #CommunityZoomSession #ClinicalTrials
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