Posts by James Burden
Living with Stargardt’s — transition from India to the UK
Stargardt’s disease, a rare genetic disorder that causes central vision loss in both eyes has shaped my life with challenges and adaptations. My experiences of living with Stargardt’s disease changed…
Read MoreEllen Gould — Seeing Stars
Ellen Gould, an Emmy-Award winning actress with Stargardt’s speaking about her upcoming film, “Seeing Stars” which is about five women with Stargardt’s. Here’s the link where you can find out…
Read MoreLife of a Student
A significant percentage of disabled people have to deal with hidden or invisible disabilities which makes it super challenging to perform daily activities. An invisible disability, such as Stargardt’s disease…
Read MoreInternational Day of Persons with Disabilities
Disability inclusion is an essential part in achieving the Sustainable Development Goals (SDGs). According to WHO, around 1.3 billion people or 16% of the total world’s population experience disability of…
Read MoreSindhu’s story
I am Sindhu from India. I was diagnosed with Stargardt’s when I was 18 years old, back in 2020. I had just completed my school and was preparing for undergrad…
Read MoreWorld Sight Day 2023
Around one billion people in the world suffer due to an untreated or preventable vision loss. To focus global attention on visual impairment, blindness and significance of eye health, the World…
Read MoreFight for Sight and Stargardt’s Connected Joint Small Grant Award
We are pleased to be able to partner with Fight For Sight this year for the Small Grant Award Scheme. The Award is now open for applications for our Stargardt’s…
Read MoreBelite Bio Trial update
The Dragon Study Phase 3, Multicenter, Randomized, Double-Masked, Placebo-Controlled Study to Evaluate the Safety and Efficacy of Tinlarebant in the Treatment of Stargardt Disease in Adolescent Subjects. The closing date…
Read MoreGlobal survey of potential participant perspectives on ocular gene therapy
A research team from Melbourne, Australia, has developed a new questionnaire on gene therapy for inherited retinal disease, known as the Attitudes to Gene Therapy for the Eye (AGT-Eye) survey.…
Read MoreRetina UK Professional and Annual Conference
Retina UK are holding their Professionals and Annual Conference at the University of Westminster Marylebone Campus, London on Friday 23rd June and Saturday 24th June respectively. These events are face-to-face…
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