Posts by James Burden
Apple Crumble
Ingredients 5 x Bramley cooking apples peeled cored and sliced 1 x 250g pack unsalted butter chopped into 1 cm squares 3 tbsps demerara sugar 2 tbsps caster sugar 325…
Read MoreAlice’s story
I first experienced problems with my sight at 22, when I was in the middle of a degree in Vocal Studies at the Royal Northern College of Music. I had…
Read MoreStargardt’s Connected achieves charity status
We are absolutely thrilled to announce that Stargardt’s Connected is now a Registered Charity – the first Stargardt’s charity in the UK! We are extremely proud to have achieved this…
Read MoreSarah Stiffin and the London Marathon
We are extremely grateful and excited for Sarah Stiffin who is running the London Marathon for Stargardt’s Connected. Please support Sarah and the work we do by donating here: https://www.justgiving.com/crowdfunding/sarah-stiffin…
Read MoreProfessor Michel Michaelides
Medical Advisor for Stargardt’s Connected Michel Michaelides BSc MB BS MD(Res) FRCOphth FACS is a Consultant Ophthalmologist at Moorfields Eye Hospital in the departments of Medical Retina, Genetics and Paediatric…
Read MoreOdette’s story
I first came to London in the mid-1980s from France to work as an au pair, which allowed me to spend my evenings taking part in dance classes at the…
Read MoreArt Therapy Session
“Inspiring, relaxing, fun and calming” were some of the words used to describe the Stargardt’s Connected Art Therapy session at the London Art Therapy Centre. Thank you to Elaine and…
Read MoreBhavna’s story
In September 2015, my son Ethan was diagnosed with Stargardt’s disease when he was just seven years old; a condition we had never heard of. Being told that he was…
Read MoreToby’s story
I was diagnosed with Stargardt’s in my mid-teens. It was a big blow, especially as I had to give up my beloved ball sports as my sight deteriorated. Strangely as…
Read MoreRobert’s story
I was diagnosed with Stargardt’s in the summer of 1981, shortly before my 21st birthday. On the day of diagnosis I was given the option to be registered partially sighted…
Read More