Stories

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Sindhu’s story

I am Sindhu from India. I was diagnosed with Stargardt’s when I was 18 years old, back in 2020. I had just completed my school and was preparing for undergrad…

Marina’s story

I’m Marina Leite. I have Stargardt Disease, and I’m from Brazil. I have a degree in History, an MBA in Marketing and Digital Communication, and I’ve just completed an MPA…

Paul’s story

I’m Paul Appleyard and I am a part time blogger with Stargardt’s Disease who loves to encourage others to aim high and chase their dreams — especially visually impaired people. I…

Katriona’s story

When I was seven years old at school the teachers noticed that I wasn’t reading the board easily and sent me off to have some eye tests. Nothing obvious showed…

Alice’s story

I first experienced problems with my sight at 22, when I was in the middle of a degree in Vocal Studies at the Royal Northern College of Music. I had…

Odette’s story

I first came to London in the mid-1980s from France to work as an au pair, which allowed me to spend my evenings taking part in dance classes at the…