Stargardt’s Connected Information Day

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https://us02web.zoom.us/meeting/register/MeABUY-aTHW90Qg8-0ydMg

We have an exciting programme of presentations covering a range of topics. Here is the agenda for the day:

• 14:00-14:10: Introductions and order of the day
• 14:10-14:40: AAVantgarde Bio presentation with Q and A
• 14:40-15:10: Alkeus Pharmaceuticals presentation with Q and A
• 15:10-15:15: Break
• 15:15-15:45: Tech Session with Sam Seavey from The Blind Life with Q and A
• 15:45-16:15: Living well with Stargardt’s panel session with community members speaking about their experiences including Q and A:
  – Emily – Navigating the education system
  – Alice – Bringing up a young family when you have Stargardt’s
  – Tom and Toby – Finding employment and being in the workplace
• 16:15-16:20: Plenary
• 16:20-16:30: Break
• 16:30-17:30: Breakout Sessions – informal small group sessions to socialise and speak to other members. There will be a separate Parent / Carer breakout session for those who want to join, with Sian QTVI (qualified teacher of visually impaired) there to answer any education-related questions.

Thank you to our sponsors: Alkeus Pharmaceuticals and AAVantgarde Bio