Latest Past Events
Stargardt’s Connected Community Zoom Session (May)
Online (Zoom)Jonathon Vine, Senior Director of Clinical Operations at SpliceBio will provide an update on their Stargardt's clinical trials with an opportunity for questions and answers afterwards. Register in advance for this meeting https://us02web.zoom.us/meeting/register/N86MUBXtRtifMOTxUpucVw After registering, you will receive a confirmation email containing information about joining the meeting.
Stargardt’s Connected Community Zoom Session (April)
Online (Zoom)Emmy award winning actress Ellen Gould will be joining us to give an update on her upcoming film, Seeing Stars, inspired by stories of five women with Stargardt’s. Register in advance for this meeting https://us02web.zoom.us/meeting/register/WL0HXSPoRSqXTwxet4VOPQ After registering, you will receive a confirmation email containing information about joining the meeting.
Stargardt’s Connected Parent’s Zoom Session
Online (Zoom)A chance for parents of children and young people with Stargardt's to get together and share ideas and discussion with other parents in the community. This month we will have a Q&A with Sian Muggridge, QTVI (qualified teacher of young people with vision impairment) all about education. Register in advance for this meeting https://us02web.zoom.us/meeting/register/qYW80-rZRdCaVDmSBrTU4A After…