🌟Our September Stargardt Star is Ethan Tailor. 🌟
This September marks
10 years since Ethan’s Stargardt’s diagnosis.
Ethan was 7 when he was diagnosed with Stargardt’s in 2015 and is one of the motivations for the charity Stargardt’s Connected being set up.
Since his diagnosis, Ethan has continuously been involved in fundraising and raising awareness of Stargardt’s- from doing a whole school Assembly about his condition when he was 8, being on the news, on the radio and in the papers, having a short film made about his diagnosis journey and presenting at international conferences.
Despite the challenges he has faced with progressive vision loss, his positivity and can do attitude has always shone through. He has an adventurous spirit and has been cliff diving, skiing and learnt to scuba dive in Zanzibar!
His real passion is cooking and he is an avid and super talented cook getting 100% in his GCSE practical Food Tech exam.
He has won multiple awards for his hard work, resilience and positive attitude.
He is currently doing his A levels, has a part-time weekend job in a cafe, hopes to go to University and aspires to run his own restaurant business as a chef.
Ethan says, “Don’t let Stargardt’s stop you following your dreams. There will be challenges but with adaptations, and a positive mindset, you can achieve your dreams”.
The world has always been his oyster and has never let his sight loss stop him with his own saying being, “The limit is what you choose”.
🌟Keep shining Ethan! 🌟
PD1: Ethan is wearing a blue T-shirt and is standing in front of a California Beach.
PD2: A younger photo of Ethan when he was newly diagnosed in his blue Beavers uniform holding a trophy
PD3: A photo of Ethan wearing a blue ski jacket standing on a ski slope.
PD4: A plated chocolate fondant with a gooey middle, cooked by Ethan
#StargardtsConnected #StargardtsStar #Resilience
#StargardtsChef #NeverGiveUp #TheLimitIsWhatYouChoose
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