Support Financial Support Grants There are various grants you can apply for. They will each specify the eligibility criteria and what the grant can go towards. RNIB The RNIB offers…

Useful Links For further information and support concerning Stargardt’s disease you can also visit: The Macular Society (​https://www.macularsociety.org/) Helpline: 0300 3030 111 Retina UK (https://retinauk.org.uk/) Helpline: 0300 111 4000 Victa…

Bake Sale Toolkit World Rare Disease Day is on 28th February: a day to raise awareness and shine a light on rare conditions. You can find out more about Rare…

Genetic Services and Testing Genetic testing methods change over time. A genetic professional from an NHS genetic clinic (http://www.geneticdisordersuk.org/parentsofaffectedchildren/managinghealthcare/specialistgeneticcentres) can arrange genetic testing, where needed, and review the inheritance pattern.…

Education I have a child / young person diagnosed with a visual impairment. What happens next? Your child / young person may or may not be registered sight impaired when…

Drug Therapy There are a number of companies that are looking at using various different drugs as a form of treatment for Stargardt’s disease. Belite Bio Belite Bio are currently…

Covid-19 We have compiled a list of resources and links you may find of use during this challenging period. We will try to keep this updated and please don’t hesitate…

Stem Cell Therapy Stem cells are notable cells that are produced in the body and have the amazing potential to transform into many different cell types during growth and early…