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You are here: Home > About > Useful links

Useful Links

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For further information and support concerning Stargardt's disease you can also visit:

The Macular Society (​https://www.macularsociety.org/)
Helpline: 0300 3030 111

Retina UK (https://retinauk.org.uk/)
Helpline: 0300 111 4000

Victa Parental Portal (https://www.victaparents.org.uk/)

News from our Faceboook page

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Stargardt's Connected
7 days ago
Stargardt's Connected

We had a fantastic time at the Hounslow Vision Impairment Partnership Celebration and Information Fair yesterday, sharing all the great work we do at Stargardt’s Connected.

It was inspiring to meet and connect with other organisations dedicated to supporting people with vision impairment. We also loved chatting with members of the community and hearing their stories. We even managed to catch some insightful presentations from doctors and medical researchers on understanding eye conditions, promoting eye health, and increasing diversity in research.

The event closed on a high note with a powerful rendition of Mariah Carey’s Hero by a wonderfully talented visually impaired singer.

PD1: Rosie, wearing a yellow t-shirt, standing by the Stargardt’s Connected stand at the Hounslow Vision Impairment Partnership Celebration and Information Fair.

#StargardtsConnected #Stargardts #VisionAwareness #Hounslow
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We had a fantastic time at the Hounslow Vision Impairment Partnership Celebration and Information Fair yesterday, sharing all the great work we do at Stargardt’s Connected.

It was inspiring to meet and connect with other organisations dedicated to supporting people with vision impairment. We also loved chatting with members of the community and hearing their stories. We even managed to catch some insightful presentations from doctors and medical researchers on understanding eye conditions, promoting eye health, and increasing diversity in research.

The event closed on a high note with a powerful rendition of Mariah Carey’s Hero by a wonderfully talented visually impaired singer.

PD1: Rosie, wearing a yellow t-shirt, standing by the Stargardt’s Connected stand at the Hounslow Vision Impairment Partnership Celebration and Information Fair.

#StargardtsConnected #Stargardts #VisionAwareness #Hounslow
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Stargardt's Connected
2 weeks ago
Stargardt's Connected

At Stargardt’s Connected, community is at the heart of everything we do. This Mental Health Awareness Week, we’re celebrating the power of connection, supporting one another through the ups, downs, and everything in between.

From peer support groups, Zoom sessions to in-person events and our community register, we’re here to bring people together. Whether you’re a young person, an adult, or a loved one of someone with Stargardt’s, you’re not alone. Stargardt’s Connected is here for you, because building connections isn’t just what we do, it’s who we are.

Send us a DM or reach out at [email protected].

PD: a collage of pictures from our different events: top left is our London Group, top right is our Stargardt’s Connected conference, bottom is our summer picnic.

#StargardtsConnected #Community #MentalHealthAwarenessWeek #ThisIsMyCommunity
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At Stargardt’s Connected, community is at the heart of everything we do. This Mental Health Awareness Week, we’re celebrating the power of connection, supporting one another through the ups, downs, and everything in between.

From peer support groups, Zoom sessions to in-person events and our community register, we’re here to bring people together. Whether you’re a young person, an adult, or a loved one of someone with Stargardt’s, you’re not alone. Stargardt’s Connected is here for you, because building connections isn’t just what we do, it’s who we are.

Send us a DM or reach out at info@stargardtsconnected.org.uk.

PD: a collage of pictures from our different events: top left is our London Group, top right is our Stargardt’s Connected conference, bottom is our summer picnic. 

#StargardtsConnected #Community #MentalHealthAwarenessWeek #ThisIsMyCommunity
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Stargardt's Connected
2 weeks ago
Stargardt's Connected

🌟We are excited to introduce unstoppable Utkarsh as this month’s Stargardt’s Star 🌟

Whilst living with Stargardt’s, Utkarsh also works in supply chain finance, reads between 50 and 100 books each year thanks to assistive technology and his passion for learning, and is a devoted husband and father to a two-year-old. Utkarsh is also the author of the science fiction novel The Gravity Shock Planet 2121, which earned a spot on Amazon’s book chart.

You can read this here: tinyurl.com/55vwbe8a

Utkarsh’s message to the community: “It’s not that easy. I’ve had to jump through multiple hoops and still face ongoing challenges. But this is a lifelong battle I’m willing to fight. I’m determined to bring greater awareness to Stargardt’s, not through pity, but through meaningful contribution. Disability doesn’t mean inability. And our challenges don’t define us- our drive to rise does”.

Utkarsh, your drive and determination is truly inspiring. 🌟

PD: a photo of Utkarsh in front of a red curtain at the Indian Authors Academy. Utkarsh is wearing a white t-shirt and is holding two books in front of him, the Travel India Word Search Puzzle book and Utkarsh’s book The Gravity Shock Planet 2121.

#StargardtsStar #StargardtsConnected #InspiringStories #SciFiAuthor #TheGravityShockPlanet2121 #Bookstagram #StargardtsCommunity #Stargardts
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🌟We are excited to introduce unstoppable Utkarsh as this month’s Stargardt’s Star 🌟 

Whilst living with Stargardt’s, Utkarsh also works in supply chain finance, reads between 50 and 100 books each year thanks to assistive technology and his passion for learning, and is a devoted husband and father to a two-year-old. Utkarsh is also the author of the science fiction novel The Gravity Shock Planet 2121, which earned a spot on Amazon’s book chart.

You can read this here: https://tinyurl.com/55vwbe8a

Utkarsh’s message to the community: “It’s not that easy. I’ve had to jump through multiple hoops and still face ongoing challenges. But this is a lifelong battle I’m willing to fight. I’m determined to bring greater awareness to Stargardt’s, not through pity, but through meaningful contribution. Disability doesn’t mean inability. And our challenges don’t define us- our drive to rise does”.

Utkarsh, your drive and determination is truly inspiring. 🌟

PD: a photo of Utkarsh in front of a red curtain at the Indian Authors Academy. Utkarsh is wearing a white t-shirt and is holding two books in front of him, the Travel India Word Search Puzzle book and Utkarsh’s book The Gravity Shock Planet 2121. 

#StargardtsStar #StargardtsConnected #InspiringStories #SciFiAuthor #TheGravityShockPlanet2121 #Bookstagram #StargardtsCommunity #Stargardts
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  • likes love 12
  • Shares: 1
  • Comments: 1

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