Today we’re celebrating World Rare Disease Day!
Over 300 million people worldwide live with a rare disease.
Collectively, rare diseases are actually not that rare at all affecting 1 in 17 people. This year’s theme is equity focussing on breaking down barriers to ensure that people with rare diseases are thriving.
Stargardt’s is a rare, inherited, progressive eye condition affecting around 1 in 10,000 people, causing central vision loss.
At Stargardt’s Connected, we are proud to raise awareness, give support to our community, and help fund research to seek a treatment or cure.
Find out more at stargardtsconnected.org.uk
Today we celebrate the strength in our community and the progress we’re building together. 💛
PD1: a photo from our Picnic in the Park 2025.
PD2: an infographic that reads ‘I support Rare Disease Day’
#RareDiseaseDay #RareDiseaseAwareness #Stargardts #StargardtsConnected #RareButNotAlone @rarediseasedayofficial
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