Posts by James Burden
Robert’s story
I was diagnosed with Stargardt’s in the summer of 1981, shortly before my 21st birthday. On the day of diagnosis I was given the option to be registered partially sighted…
Read MoreYvonne’s story
There are several unique experiences peculiar to living with Stargardt’s disease; some very personal and others played out quite publicly. Through these experiences I learn the truths that mould and…
Read MoreKatie’s story
On the 13th June 2017, I went off to a routine eye appointment that I attended every two years. I thought absolutely nothing of it as I drove there, but…
Read MoreSocial Meet Up November 2018
In November 2018, Stargardt’s Connected organised another pub meet up in London for the Stargardt’s community after the Sight Village Exhibition in Kensington. This was a fantastic opportunity for people…
Read MoreNutrition Project and Art Therapy Session September 2018
In September 2018, Stargardt’s Connected organised a nutrition chat for Stargardt’s families. The discussion was led by Dr Rosie Gilbert from Moorfields Eye Hospital and Dr Andi Skilton from NIHR…
Read MoreHyde Park Picnic August 2018
We held our second picnic at the Hyde Park and we had people travel from far and near to join us. We even had Dave Ellis, a world champion para-triathlete,…
Read MoreSchool Fundraiser
Bhavna Tailor’s son Ethan was keen to hold a Stargardt’s awareness and fundraising day at his school and she helped him organise a day of fundraising events. His fellow classmates…
Read MoreGoalball Session June 2018
In June 2018, Stargardt’s Connected organised a Goalball taster session run by Kathryn Fielding from Goalball UK. It was a fun-filled active session and we were fortunate to have Antonia…
Read MoreFundraising Coffee Morning
One of the lovely school mum friends offered to hold a coffee morning to raise money for Stargardt’s Connected. It’s always good to talk, drink tea and have cake… An…
Read MoreComedy Night
In November 2017, Stargardt’s Connected held a Comedy Night to fundraise for the Stargardt’s Community. It was a fantastic night with top comedy acts and excellent hosting skills by Shelley Chopra.…
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