Stargardt’s Connected Conference 2024
etc. venues 8 Fenchurch Place, London, United Kingdom2025 Stargardt Summit
Newton Country Day School of the Sacred Heart 785 Centre Street, Newton, MA, United StatesOur Time is Now—there has never been a more promising time for research for treatments for Stargardt, more breathtaking advances in assistive technology, more connection between our community and helpful…
Stargardt’s Connected Young People’s Zoom Session
Online (Zoom)A chance for young people with Stargardt's to get together, share ideas and have discussions with other young people in the community. This month we will be talking about how…
Stargardt’s Connected Parent’s Zoom Session
Online (Zoom)A chance for parents of children and young people with Stargardt's to get together and share ideas and discussion with other parents in the community. This month we will have…
Stargardt’s Connected Community Zoom Session (April)
Online (Zoom)Emmy award winning actress Ellen Gould will be joining us to give an update on her upcoming film, Seeing Stars, inspired by stories of five women with Stargardt’s. Register in…
Stargardt’s Connected Community Zoom Session (May)
Online (Zoom)Jonathon Vine, Senior Director of Clinical Operations at SpliceBio will provide an update on their Stargardt's clinical trials with an opportunity for questions and answers afterwards. Register in advance for…