2025 Stargardt Summit

Newton Country Day School of the Sacred Heart 785 Centre Street, Newton, MA, United States

Our Time is Now—there has never been a more promising time for research for treatments for Stargardt, more breathtaking advances in assistive technology, more connection between our community and helpful…

Free

Stargardt’s Connected Young People’s Zoom Session

Online (Zoom)

A chance for young people with Stargardt's to get together, share ideas and have discussions with other young people in the community. This month we will be talking about how…

Stargardt’s Connected Parent’s Zoom Session

Online (Zoom)

A chance for parents of children and young people with Stargardt's to get together and share ideas and discussion with other parents in the community. This month we will have…

Stargardt’s Connected Community Zoom Session (April)

Online (Zoom)

Emmy award winning actress Ellen Gould will be joining us to give an update on her upcoming film, Seeing Stars, inspired by stories of five women with Stargardt’s. Register in…

Stargardt’s Connected Community Zoom Session (May)

Online (Zoom)

Jonathon Vine, Senior Director of Clinical Operations at SpliceBio will provide an update on their Stargardt's clinical trials with an opportunity for questions and answers afterwards. Register in advance for…