Events

Rare Disease Day Celebration with Dr Thales Guimaraes on latest Stargardt's Research We are delighted to have Dr Thales Guimaraes present at our Community Zoom on the latest Stargardt’s Research Register in advance for this meeting https://us02web.zoom.us/meeting/register/Dc_MeGk5Q_m2XlT-ghiVzg After registering, you will receive a confirmation email containing information about joining the meeting.

We will be joined by Chantelle from Blind in Business for a presentation on what the organisation offers, followed by Chris and Jess who will be sharing their career stories. Register in advance for this meeting https://us02web.zoom.us/meeting/register/5FawSpYqSDWQn6LTezY0rg After registering, you will receive a confirmation email containing information about joining the meeting.

Come and join us for an eggciting Easter-themed Children and Young People’s Zoom session on Monday 13th April. We will be joined by Tilly, who will be leading the session where we will be doing Easter activities such as arts and crafts and a scavenger hunt.  Register in advance for this meeting https://us02web.zoom.us/meeting/register/Sg7ZAuyaTyepta7WZtOD1w After registering,…

EHCP tips with QTVI Sian Muggridge Register in advance for this meeting https://us02web.zoom.us/meeting/register/AwKt1jvpQxeUzAikxEwtsg After registering, you will receive a confirmation email containing information about joining the meeting.

Join us on Saturday 16th May where we will be joined by our wonderful trustee Robert McCann brining us all the top tips and advice on how to use assistive tech to enhance our daily lives living with Stargardt’s. Register in advance for this meeting https://us02web.zoom.us/meeting/register/SXWwRc5PSTClKJRNge3sYw After registering, you will receive a confirmation email containing…

We will be joined by the fantastic Zakia, a wellbeing and mindfulness practitioner, to guide us through some mental health and wellbeing activities. Register in advance for this meeting https://us02web.zoom.us/meeting/register/iLUQXbAbRz6VTpwCeXf03g After registering, you will receive a confirmation email containing information about joining the meeting.

Join us on Monday 1st June for our next Parent and Carer Zoom session where we will be joined by Sian Muggridge, Qualified Teacher of Visually Impaired, to discuss educational transitions, from primary to secondary, post-16 and beyond. Register in advance for this meeting https://us02web.zoom.us/meeting/register/Tei8patPSF-a56ijTW9rFA After registering, you will receive a confirmation email containing information…

Top tips for travelling and sharing experiences and advice for making the best day out! Register in advance for this meeting https://us02web.zoom.us/meeting/register/AddM8kHTR0GAi8uPEwg99A After registering, you will receive a confirmation email containing information about joining the meeting.

We will be joined by Dr Louise Terry from Cardiff University to talk about an exciting research study exploring Stargardt's disease and how it affects the retina. Dr Terry will explain the aims of the study, what participation involves, and why research like this is so important in improving our understanding of inherited eye diseases.…

Join us in Hyde Park London for a day of fun in the sun and sharing experiences with others in the Stargardt's Community. Please let us know you will be…