Our Time is Now—there has never been a more promising time for research for treatments for Stargardt, more breathtaking advances in assistive technology, more connection between our community and helpful resources, and more excitement about the first ever fictional film in the making about Stargardt, SEEING STARS, sure to be an awareness explosion. Join us…

A chance for young people with Stargardt's to get together, share ideas and have discussions with other young people in the community. This month we will be talking about how…

A chance for parents of children and young people with Stargardt's to get together and share ideas and discussion with other parents in the community. This month we will have…

Emmy award winning actress Ellen Gould will be joining us to give an update on her upcoming film, Seeing Stars, inspired by stories of five women with Stargardt’s. Register in…

Jonathon Vine, Senior Director of Clinical Operations at SpliceBio will provide an update on their Stargardt's clinical trials with an opportunity for questions and answers afterwards. Register in advance for…

Living with Stargardt's: Sharing tips and experiences and show and tell your favourite apps/tech. Register in advance for this meeting https://us02web.zoom.us/meeting/register/TAUnTBl0RJCZoOUSKOp0bw After registering, you will receive a confirmation email containing…

Informal chat to share experiences (joined by QTVI Sian Muggridge) . Register in advance for this meeting https://us02web.zoom.us/meeting/register/a_DVjGY8QkOP_QI2fANg1w After registering, you will receive a confirmation email containing information about joining…

We are delighted to have Dr. Alekseev, a Principal Investigator for the Belite Bio DRAGON II study at Duke University Hospital (Duke Eye Center USA) joining this session to share…

Come join us for our annual Summer Picnic in the Park. Bring your own picnic and have the opportunity to informally network, and meet others with Stargardt's and their families.