Our Time is Now—there has never been a more promising time for research for treatments for Stargardt, more breathtaking advances in assistive technology, more connection between our community and helpful resources, and more excitement about the first ever fictional film in the making about Stargardt, SEEING STARS, sure to be an awareness explosion. Join us…

A chance for young people with Stargardt's to get together, share ideas and have discussions with other young people in the community. This month we will be talking about how to advocate for yourself. Register in advance for this meeting https://us02web.zoom.us/meeting/register/X9o4obwUQDK7AVA_sgZ9KA After registering, you will receive a confirmation email containing information about joining the meeting.

A chance for parents of children and young people with Stargardt's to get together and share ideas and discussion with other parents in the community. This month we will have a Q&A with Sian Muggridge, QTVI (qualified teacher of young people with vision impairment) all about education. Register in advance for this meeting https://us02web.zoom.us/meeting/register/qYW80-rZRdCaVDmSBrTU4A After…

Emmy award winning actress Ellen Gould will be joining us to give an update on her upcoming film, Seeing Stars, inspired by stories of five women with Stargardt’s. Register in…