Events

Register Now! https://us02web.zoom.us/meeting/register/MeABUY-aTHW90Qg8-0ydMg We have an exciting programme of presentations covering a range of topics. Here is the agenda for the day: 14:00-14:10: Introductions and order of the day 14:10-14:40: AAVantgarde Bio presentation with Q and A 14:40-15:10: Alkeus Pharmaceuticals presentation with Q and A 15:10-15:15: Break 15:15-15:45: Tech Session with Sam Seavey from The…

The festive season is upon us and to celebrate we will be holding a Christmas-themed hour for our next children and young people’s Zoom session. This will include some festive…

It’s our last parent’s session of the year and we will have Sian our QTVI there to answer any education-related queries. We know how hectic this time of year can be so we are delighted to have Zakia, a wellbeing practitioner, to bring some calm to the busyness and guide you through some breathing and…

Following on from AAVantgarde Bio’s presentation at our Information Day, we are delighted to welcome back Dr Claudio Spero to our last Community Zoom of the year. He will be speaking in more detail about the Stargardt’s studies CELESTE and STELLA and there will be opportunities for a Q&A after. Register in advance for this…

Exam tips and revision techniques. Register in advance for this meeting https://us02web.zoom.us/meeting/register/tzl0lnxhTfmNPwDEsWJCOg After registering, you will receive a confirmation email containing information about joining the meeting.

Exam 101 (Our QTVI will be on hand to answer questions about exams and revision resources) Register in advance for this meeting https://us02web.zoom.us/meeting/register/x4-vQYwNRcW1DNX2Ww8cug After registering, you will receive a confirmation email containing information about joining the meeting.

A presentation from Stargardt's Connected trustee Louise Kearney on clinical trials and jargon busting. Register in advance for this meeting https://us02web.zoom.us/meeting/register/Dc_MeGk5Q_m2XlT-ghiVzg After registering, you will receive a confirmation email containing information about joining the meeting.

Getting Active with Ellie Dowdy We will be joined by Ellie Dowdy, a fantastic young member of the Stargardt’s Community who will be talking all about getting active with Stargardt’s.…

Rare Disease Day Celebration with Dr Thales Guimaraes on latest Stargardt's Research We are delighted to have Dr Thales Guimaraes present at our Community Zoom on the latest Stargardt’s Research Register in advance for this meeting https://us02web.zoom.us/meeting/register/Dc_MeGk5Q_m2XlT-ghiVzg After registering, you will receive a confirmation email containing information about joining the meeting.

We will be joined by Chantelle from Blind in Business for a presentation on what the organisation offers, followed by Chris and Jess who will be sharing their career stories.…