Events

Come join us for our annual Summer Picnic in the Park. Bring your own picnic and have the opportunity to informally network, and meet others with Stargardt's and their families.…

Join VICTA and Stargardt’s Connected at Lee Valley White Water Centre in September for an activity day making waves. Taking advantage of Lee Valley’s Olympic facilities, we will begin the…

Vicky, Rob and Marina will discuss travel tips for people with VI. Register in advance for this meeting https://us02web.zoom.us/meeting/register/6CWtuK47STOWmkXTptrNGQ After registering, you will receive a confirmation email containing information about joining the meeting.

Register Now! https://us02web.zoom.us/meeting/register/MeABUY-aTHW90Qg8-0ydMg We have an exciting programme of presentations covering a range of topics. Here is the agenda for the day: 14:00-14:10: Introductions and order of the day 14:10-14:40: AAVantgarde Bio presentation with Q and A 14:40-15:10: Alkeus Pharmaceuticals presentation with Q and A 15:10-15:15: Break 15:15-15:45: Tech Session with Sam Seavey from The…

The festive season is upon us and to celebrate we will be holding a Christmas-themed hour for our next children and young people’s Zoom session. This will include some festive games and cookie decorating. Don’t forget to wear your festive jumpers. Register in advance for this meeting https://us02web.zoom.us/meeting/register/jAiu-ZhzQZ-rN68KqyhUWw After registering, you will receive a confirmation…

It’s our last parent’s session of the year and we will have Sian our QTVI there to answer any education-related queries. We know how hectic this time of year can be so we are delighted to have Zakia, a wellbeing practitioner, to bring some calm to the busyness and guide you through some breathing and…

Following on from AAVantgarde Bio’s presentation at our Information Day, we are delighted to welcome back Dr Claudio Spero to our last Community Zoom of the year. He will be speaking in more detail about the Stargardt’s studies CELESTE and STELLA and there will be opportunities for a Q&A after. Register in advance for this…

Exam tips and revision techniques. Register in advance for this meeting https://us02web.zoom.us/meeting/register/tzl0lnxhTfmNPwDEsWJCOg After registering, you will receive a confirmation email containing information about joining the meeting.

Exam 101 (Our QTVI will be on hand to answer questions about exams and revision resources) Register in advance for this meeting https://us02web.zoom.us/meeting/register/x4-vQYwNRcW1DNX2Ww8cug After registering, you will receive a confirmation email containing information about joining the meeting.

A presentation from Stargardt's Connected trustee Louise Kearney on clinical trials and jargon busting. Register in advance for this meeting https://us02web.zoom.us/meeting/register/Dc_MeGk5Q_m2XlT-ghiVzg After registering, you will receive a confirmation email containing information about joining the meeting.