Events
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Stargardt’s Connected Parent’s Zoom Session (December)
Online (Zoom)It’s our last parent’s session of the year and we will have Sian our QTVI there to answer any education-related queries. We know how hectic this time of year can…
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Stargardt’s Connected Community Zoom Session (December)
Online (Zoom)Following on from AAVantgarde Bio’s presentation at our Information Day, we are delighted to welcome back Dr Claudio Spero to our last Community Zoom of the year. He will be…
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Stargardt’s Connected Young People’s Zoom Session (January 2026)
Online (Zoom)Exam tips and revision techniques. Register in advance for this meeting https://us02web.zoom.us/meeting/register/tzl0lnxhTfmNPwDEsWJCOg After registering, you will receive a confirmation email containing information about joining the meeting.
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Stargardt’s Connected Parent’s Zoom Session (January 2026)
Online (Zoom)Exam 101 (Our QTVI will be on hand to answer questions about exams and revision resources) Register in advance for this meeting https://us02web.zoom.us/meeting/register/x4-vQYwNRcW1DNX2Ww8cug After registering, you will receive a confirmation…
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Stargardt’s Connected Community Zoom Session (January 2026)
Online (Zoom)A presentation from Stargardt's Connected trustee Louise Kearney on clinical trials and jargon busting. Register in advance for this meeting https://us02web.zoom.us/meeting/register/Dc_MeGk5Q_m2XlT-ghiVzg After registering, you will receive a confirmation email containing…
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Stargardt’s Connected Young People’s Zoom Session (February 2026)
Online (Zoom)Getting Active with Ellie Dowdy We will be joined by Ellie Dowdy, a fantastic young member of the Stargardt’s Community who will be talking all about getting active with Stargardt’s.…
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Stargardt’s Connected Community Zoom Session (February 2026)
Online (Zoom)Rare Disease Day Celebration with Dr Thales Guimaraes on latest Stargardt's Research We are delighted to have Dr Thales Guimaraes present at our Community Zoom on the latest Stargardt’s Research Register…
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Stargardt’s Connected Community Zoom Session (April 2026)
Online (Zoom)We will be joined by Chantelle from Blind in Business for a presentation on what the organisation offers, followed by Chris and Jess who will be sharing their career stories. Register in advance for this meeting https://us02web.zoom.us/meeting/register/5FawSpYqSDWQn6LTezY0rg After registering, you will receive a confirmation email containing information about joining the meeting.
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Stargardt’s Connected Young People’s Zoom Session (April 2026)
Online (Zoom)Come and join us for an eggciting Easter-themed Children and Young People’s Zoom session on Monday 13th April. We will be joined by Tilly, who will be leading the session where we will be doing Easter activities such as arts and crafts and a scavenger hunt. Register in advance for this meeting https://us02web.zoom.us/meeting/register/Sg7ZAuyaTyepta7WZtOD1w After registering,…
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Stargardt’s Connected Parents and Carers Zoom Session (April 2026)
Online (Zoom)EHCP tips with QTVI Sian Muggridge Register in advance for this meeting https://us02web.zoom.us/meeting/register/AwKt1jvpQxeUzAikxEwtsg After registering, you will receive a confirmation email containing information about joining the meeting.