Ellen Gould, an Emmy-Award winning actress with Stargardt’s speaking about her upcoming film, “Seeing Stars” which is about five women with Stargardt’s. Here’s the link where you can find out…
Read MoreWe are extremely grateful and excited for Sarah Stiffin who is running the London Marathon for Stargardt’s Connected. Please support Sarah and the work we do by donating here: https://www.justgiving.com/crowdfunding/sarah-stiffin…
Read MoreUseful Links For further information and support concerning Stargardt’s disease you can also visit: The Macular Society (https://www.macularsociety.org/) Helpline: 0300 3030 111 Retina UK (https://retinauk.org.uk/) Helpline: 0300 111 4000 Victa…
Read MoreBake Sale Toolkit World Rare Disease Day is on 28th February: a day to raise awareness and shine a light on rare conditions. You can find out more about Rare…
Read MoreGenetic Services and Testing Genetic testing methods change over time. A genetic professional from an NHS genetic clinic (http://www.geneticdisordersuk.org/parentsofaffectedchildren/managinghealthcare/specialistgeneticcentres) can arrange genetic testing, where needed, and review the inheritance pattern.…
Read MoreDrug Therapy There are a number of companies that are looking at using various different drugs as a form of treatment for Stargardt’s disease. Belite Bio Belite Bio are currently…
Read MoreStem Cell Therapy Stem cells are notable cells that are produced in the body and have the amazing potential to transform into many different cell types during growth and early…
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